Cystic Fibrosis Forum (EXP)

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  1. H

    Please help!

    Dear Friends: It has been a while since I have last posted and part of that is just being so busy with twins. I had to go off my TOBI due to vestibuler issues and was put on Aztreonam extended care use program. When I am on it I am very healthy can even do things I never thought possible yet...
  2. H

    Desperately seeking advice. Women only please!

    I know I haven't posted for awhile but I have been very busy with my babies enjoying them so much but I need some help from anyone out there and don't know where to turn. Wondering if this is a cf issue or something else please anyone who has history of this or can offer some advice please...
  3. H

    Desperately seeking advice. Women only please!

    I am a 29 year old mother of twins with cf and went through ivf to conceive. The reason why we went through ivf is because I have abnormal uterine bleeding. Meaning for the past 5-6 years I have only gone I'd say three or four days in a row without bleeding. It totally cramps my lifestyle...
  4. H

    Twins have arrived!

    It feels like forever since I last posted but so much has happened by head is spinning. My precious babies were born on Thursday, December 27th, 2007. Cameron Scott weighed in at 4 pounds 8 oz and Alexis Jean was 4 pounds 4 oz. They are ten days old today and my heart breaks each night Scott...
  5. H

    C-section questions

    Well it has been determined that I will probably need a c-section due to the position of the babies (one is head down but the other is franklin breech and too much risk of hurting her if we did natural...) For those of you who had a c-section: 1) how was pain managment after surgery? 2) Were...
  6. H

    I am 32 weeks today but not doing so well!

    Well we have made it to the magical 32 week goal I can't believe the twins are doing so well!!! Their weights were measured in at 4 pounds and 4 pounds 9 oz. Our lil girl is bigger than our boy and they are so adorable to watch on the ultrasound.. Last night I was hospitalized for shortness of...
  7. H

    PLEASE HELP NEED ANSWERS RIGHT AWAY!

    It has been a while since I posted and update but I am in desperate need of replies as soon as possible! I am now 28 weeks pregnant with twins and this is the second time I had to go on ivs due to an infection. I just finished the ivs and now everything is coming right out of me. I have...
  8. H

    MRSA Question

    Can anyone please tell me? If a mom cultured for mrsa and the babies don't have cf will they get it? Does that mean a mom with mrsa always should wear a mask around her babies? Kelly
  9. H

    weight gain in pregnancy question please respond!

    Hey Guys, Today I am officially 24 weeks! Important day since now they tell me the twins are viable but definately am reaching for the goal of at least 12 more weeks with them. So far I have gained 15-17 pounds (depending on what scale I use) and was wondering, how much weight did everyone...
  10. H

    How is this possible????

    Dear Friends, Something has happened today I am still in shock and my cf doc and cf nurse don't know quite what to make of this. On Sept. 11 I had a hemoptisis and was admitted for ivs. They made sure that the drugs they gave were Class B drugs so the risks were lower than the benefit to the...
  11. H

    We are having a Boy and a Girl !!!

    I feel like we have won the ivf lottery! Baby A: Boy Baby B: Girl Walking on Sunshine, Kelly
  12. H

    Babies gave me a scare last night!

    I write this with hopeful anticipation but am worried that my pregnancy may be in jeporady. Last night I got up during a storm to use the restroom. I couldn't believe what I saw. Bright blood everywhere in the toilet. I started screaming and crying for my DH to help me. He saw the blood and...
  13. H

    What does a perintologist do?

    Because I have cf and having twins my cf doc and obgyn reccommends I see a perintologist(spelling?) ... Has anyone had experience with this and if so what is the difference between what the obgyn does and what the perintologist does? Kelly
  14. H

    Please Help 11 weeks today and loosing weight

    Hey Guys, I am 11 weeks today with twins and have lost three pounds. I normally have no problems keeping weight on but this is the hardest thing in the world. I guess it doesn't help that I hate chocolate, ice cream, and anything remotely that would be considered fattening. I have always been...
  15. H

    WE saw the heartbeats!

    We saw the heartbeats today! One measured at 6wks6days and the other measured 6wks5days! We will be able to hear them at our last RE appt on July 3rd before getting released to obgyn! Afterwards we went to a cf clinic appt. I can't believe I thought I was coming down with a virus but my pfts...
  16. H

    WE saw the heartbeats!

    We saw the heartbeats today! One measured at 6wks6days and the other measured 6wks5days! We will be able to hear them at our last RE appt on July 3rd before getting released to obgyn! Afterwards we went to a cf clinic appt. I can't believe I thought I was coming down with a virus but my pfts...
  17. H

    WE saw the heartbeats!

    We saw the heartbeats today! One measured at 6wks6days and the other measured 6wks5days! We will be able to hear them at our last RE appt on July 3rd before getting released to obgyn! Afterwards we went to a cf clinic appt. I can't believe I thought I was coming down with a virus but my pfts...
  18. H

    WE saw the heartbeats!

    We saw the heartbeats today! One measured at 6wks6days and the other measured 6wks5days! We will be able to hear them at our last RE appt on July 3rd before getting released to obgyn! Afterwards we went to a cf clinic appt. I can't believe I thought I was coming down with a virus but my pfts...
  19. H

    WE ARE Having TWINS!!!

    I am still in shock as I write this but... We just found out we are having twins. Two sacs and Two YOLKs. We go back in next Friday to see if their is two heartbeats! Very excited but cautiously optimistic, Kelly
  20. H

    Coughing and Pregnancy

    I just found out that I am pregnant and fear the baby(s) safety during some of my coughing spells. Usually I cough most right when I get up until I walk my three miles and have a treatment. Can those women with cf tell me the following: 1) Did you have coughing spells when first finding out...
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