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Has anyone ordered the conference CFRI DVD's? Or did anyone attend the conference? Is it worth ordering? I am always wanting to learn more, but don't want to rehash stuff I have heard over and over. Let me know if you have any info. Thanks!

Porter's Dr. is not aware of any official parent support groups in the Cleveland area but thinks some parents may get together from time to time. Just putting the feelers out there to any one my area interested in a parent support group or letting me in on an existing one. I on the West side...

Last night I was watching HGTV's "Get It Sold" and as they were panning the camera around the living room, there was the VEST sitting on the floor! It was the condo of a single girl in Virginia, I think. The show never mentioned it, it was just fun to see it there on the floor and know exactly...

After 10 days on Bactrum, Porter is not improving so Dr. prescribed 5 days of prednisone. We have never had this before. What are some of your experinces with it? thanks guys!

Hi! Porter had a chest xray 2 weeks ago and it showed either the start of pneumonia or atelectasis. He was put on Augmenten and just finished on Monday. Two days ago, he starts back up with a really wet cough and runny nose. Yesterday he did a repeat chest xray and it came out "clear." What...

Hi All! Porter finished a round of Bactrum, was fine for a little over a week, then his nose turned back into a faucet! His Pulm. said to call her if it was still bad after a week. A week went by and it was not getting better, it was getting a little worse. She prescribed another round of...

I am just wondering what other toddlers with CF are culturing for? My son was diagnosed at 11 months in February of this year. He has been culturing staph, but recently cultured staph AND hemophilus influenzae AND another something that they have not fully identified. We should have those...

Can a person get a used vest from someone or are they all cutom fit? There is also the passing of germs to consider. I just don't know if there is something like a vest exchange. Thanks.

Does anyone know if tiring easily is a symptom of CF? My son (13 months) has not had any real lung issues yet (DX February). It seems as if he is getting tired really easily. Tonight he (as he often does) was falling asleep at 6:30pm. He had a good nap this afternoon. He sleeps through the...

Can anyone tell me about some of these medications that everyone is discussing? TOBI and Pulmozyme? Is this what I can expect my son to eventually be on? What are they for? He is recently diagnosed one year old. no lung problems, positive for staph, enzymes, albuterol and CPT twice a day...

Hi, I am new to this site. This is my first post. My one year old son, born 3-17-06 was just diagnosed on February 20th. He has 2 mutations, DF508 and 1717G>A. He was a very difficult baby, I thought I would have it down pat by the third! He had bulky stools, but most obvious was his growth. He...

Hi, I am new to this site. This is my first post. My one year old son, born 3-17-06 was just diagnosed on February 20th. He has 2 mutations, DF508 and 1717G>A. He was a very difficult baby, I thought I would have it down pat by the third! He had bulky stools, but most obvious was his...