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Hey everybody.....please check out my CF awareness stuff.....and let me know what you think.....first time....if all goes well I'll get a little braver and do more........ <a target=_blank class=ftalternatingbarlinklarge href="http://www.cafepress.com/CLAWSON5104">CF awareness stuff</a>

Hi everybody, over the last few months we have been dealing with Wade's bowel issues. He is going good now, but the last xray he had in ER got a report saying he should be tested for Hirschsprung's Disease. I read up on it, and it does sound like Wade......I suppose we will be doing some...

Hi everybody....... I am just wondering....... How did you get docs to do genetic testing on your child's siblings? Initially I didn't think about what symptoms my older kids had, until we got down to business with Wade, and of course, now I see some mild symptoms in two of my other kids. My...

Hey everybody, just a update (since it's been FOREVER).....lets just say I am running my own clinic.......I get one or two better, we start over again, or I get sick etc. Well, I had labs for pre-op(tubal) friday....friday night and saturday I was fevered. sat, sun, and today hubby was...

hi everybody, I have a friend w/ 11mos son. who has a cleft on his soft palate. she is having a hard time getting straight answers from docs, and i told her my CF friends may know some answers,,, I'd give it a try.......so here it goes. her son has a cleft on his soft palate ONLY. not cleft...

Hi everybody, i haven't updated on the "runt" since july i think. thought i would update my "44/43 sweat test results...." post I started. I can say this much, THIS IS A DIFFERENT WORLD IN CF LAND. Now that I have adjusted, and I think totally convinced the world Wade is a cf'er, it's...

Hi it's me again.....Wade started with some serious drainage yesterday, followed by low fever (100) then 2am-4am vomitted twice. still having drainage, slight cough, no vomitting. not eating, barely drinking. gave him extra albuterol, extra cpt. donno what to do. from very small town, not...

We are in West Virginia, and would like find more resources for info, doctors, labs, etc. etc. I like my son's doctors. But would like to know where I can get more info if necessary. thanks

hi, i'm new here....obviously. my 21mo son's sweat test results were 43 & 44. his pulmonologist called me with the results and advised me that this "more than likely" meant that he had cf. there is no known knowledge of cf family, but he has had alot of trouble with his health. when he was...