Cystic Fibrosis Forum (EXP)

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    traveling with meds

    We're going to be traveling over Thanksgiving for the first time with all of my daughter's meds. Any suggestions on how to keep her pulmozyme cold and get it through security without being x-rayed? We're trying to take all her treatment meds and equipment as carry on, but I've been worried...
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    thirsty from HTS?

    Hi, my daughter just started on HTS a few weeks ago and I've noticed lately that she's complaining of being thirsty alot.... she'll down a whole sippy cup and want more to drink. Has anyone else noticed this with the HTS or should I think about getting her tested for diabeties? She's been on...
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    newborn diagnosed

    Help! <img src="i/expressions/brokenheart.gif" border="0">My 7 week old daughter was just diagnosed with CF. She has had no symptoms but the abnormal gene showed up on a standard test at birth... so we proceeded with the recommend sweat test. Her first test was invalid... at only 2 weeks she...
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