Search results

Hello girls. I was just wondering if anyone of you had a hormonal testing through menstrual cycle. Im dealing with irregular periods for over 12 years (god so long) and im also dealing with persistent acne. Im intending to ask my doctor to prescribe me blood testing for hormonal levels. Has any...

Seems we have good new guys! They even agreed on a discount on both drugs! See for yourselves! http://www.pharmatimes.com/Article/13-01-25/Forest_and_Novartis_gain_NICE_yes_for_lung_infections.aspx ps Its 56 doses not days!

http://www.cff.org/aboutCFFoundation/NewsEvents/11-19-CFFT-Announces-Pfizer-Agreement.cfm We've heard it before that Pfizer has been working on something strong about DF508. Its now getting some publicity over this. I hope we see their correctors soon on the pipeline! Im really optimistic to...

Is there anyone here who uses Colobreath (inhaled colistimethate sodium in powder)? Any experiences? Because it recently got approved in Europe!

http://www.uniqure.com/products/glybera/ Well i came across this article on a Greek Forum about Cf, but im not sure what does this means for us!

Im really pissed right now! As you know im from Greece and all CF patients here we've been waiting for so long for Tobi podhaler to come to market. I emailed Novartis several times and they said they are waiting for the Greek FDA to set a price officially. This week it has been announced that...

Do we have anything new about the anti PA vaccine??

Well im not sure how to start this post. I had a really bad last week and i wanted to share. The worst thing was when i woke up every day. Cough (much more than usual) stomachaches and throwing up, dizzzyness, low fevers, i had no appetite to eat anything and i only wanted to sleep all day. I...

Is anyone using Tobi and Cayston together? I mean no month off. One month Tobi one month Cayston. Are there any studies on that topic?

Hey cayston users im gonna need your help! My doctor is considering to put me on Cayston so i have some questions! 1 Do you use it like Tobi? One month on one month off? 2 Do you use Tobi on your month off? 3 Do you think Cayston helped you? How is your PFTS? Do you feel better in general? Do...

Well i recently noticed that im sweating too much. On my armpits mostly. You can see it when im wearing a shirt and its get wet almost down to the elbow. Its not when i exercise, then it would be natural i guess, but when i get nervous, anxious or stressed. I suspect it has to do with...

I Was recently in Cipro for two weeks and I think it really helps me with pseudo. I feel so much better and almost no cough!!! I gained some weight and my appettite is great! Unfortunately it wont last for long! I was wondering if your doctors prescribe oral antibiotics. What antibiotics? In...

How do you cope with the cost of Kalydeco? Are insurance companies willing t cover it or at least a part?

http://medicalxpress.com/news/2011-09-unconventional-path-cystic-fibrosis.html<br>

I was wondering if we have any news for KB001 since the pipeline of cff.org is not yet updated!<br>

is anyone here using Tobi podhaler? Id love to hear your experiences! Please share some info with us: Is it tolerable? any side effects? what about your pfts?<br><br>When is it coming out in Europe?<br>

I read in this forum that if you buy Creon they give you along with it some free supplements.Can i plz get some info?I tried their site but no luck... PS Im from Europe...

i dont know if it due to the long hot hot summer we have here in Greece but i tottaly feel out f energy!I sleep 10 hours a day everyday and though i do almost nothing during the day i still feel out of energy!Any ideas?I think i ll start working out!Bikes rides maybe....(only when the heat goes...

Since im 20 and never had a normal 28days period I asked my doctor to test my hormones....So ill be tested in October along with my regular check-up and IVs.Is there anyone else who had been through the test?Im a little worried about the results.....Any ideas?Does CF affect our hormones?

I lately considering on seeing an expert on diet issues1I was wondering if anyone has tried it and if its workin....Tomorrow im callin my doctor to reccomend me a nutritionist....She found a great idea that im starting seeing one...What do you think? My weight is now 50 kilos...I hope i could...