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I originally posted a thread asking about another bacteria that I was told my son had cultured. They got it wrong! Grrrr I know people make mistakes, but it's pretty important to give me the correct culture results. I had them fax it to me, and they even have his middle initial wrong on the...

My son just cultured this bug, and I need any information I can find about the treatment. His doctor says there are three medications that he will need to take for a year to try to eradicate this bacteria. Has anyone cultured it? Has anyone who's cultured it been able to get rid of it? What...

Has anyone tried Lavi? Opinions? Thanks. <a href="http://www.lavimed.com/product-details.html?id=29">http://www.lavimed.com/product-details.html?id=29</a> Stacey

Yup, those words came out of Jordan's mouth this morning. I'm hopeful and heartbroken all at the same time. Those of you who know me/us, will understand how shocking it was for me to hear Jordan admit that he has CF. The fact that he admitted it to someone outside of our family is...

<P>Joni could use our thoughts & prayers. She is hospitalized with a small bowel obstruction. </P> <P></P> <P>Praying for relief for you, and that you can be home with your family soon. Love you!</P> <P></P> <P>Stacey</P>

Melody passed away.  I don't know any details, but she had been struggling some over the last few months.  We've lost so many people lately.  It's a bit overwhelming. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Mel's family will be in my prayers. Stacey  

We are in chat right now - come on in. Stacey

Hi everyone. I know a lot of you are on Facebook, and I wanted to let you know about the Facebook application for this site. I'm using it all of the time now. Just go to the homepage, and you can't miss it. Just click it, and add it to your facebook profile. Then, you can keep up with...

I've been raising kids for 22 years. That's half my life. And I think I've done a pretty good job so far. <img src="i/expressions/face-icon-small-wink.gif" border="0"> So naturally, I wondered if the Love and Logic book could teach me anything that I didn't already know. Well of course the...

I found the following post in another section, and wanted to help this Mom get some answers, so I've moved it here for her. Stacey Hi I am a mom to five children. I'm here to seek some help with my 2nd youngest. My son will be 5 next month. Here is some info about my son. He has had...

Jordan needs your thoughts and prayers today. He's not feeling very well, and is having quite a bit of difficulty breathing. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I'm really hoping we don't end up at the ER! Stacey

Just wondering if anyone has heard from Jen. It's been almost a week since she posted on her blog. Thinking of you Jen. Stacey

Jordan has a very real, very serious fear of needles. In the past, we've had to give him xanax before his annual clinic appt., or before blood draws. Even with the xanax, we have to talk and plead with him until he finally gives in, and lets them stick him. It really is awful for everyone...

Jordan has a very real, very serious fear of needles. In the past, we've had to give him xanax before his annual clinic appt., or before blood draws. Even with the xanax, we have to talk and plead with him until he finally gives in, and lets them stick him. It really is awful for everyone...

I stumbled upon this post in the diagnosis section. I thought I'd better move it here where we can all offer her our support. Stacey <b>I REALLY AM JUST LEARNING ABOUT ALL THIS C.F. I AM IN HOPES THAT I WILL FIND A LOT OF SUPPORT FROM WHO EVER IS INTERESTED IN GIVING ME SOME MUCH NEEDED...

Yes, today is the day. Before he was dx, this day would have been special, but it's definitely more significant now. I know he is starting to realize that too. I sent him a text this morning to tell him happy birthday, and that I love him. (He leaves for work at the crack of dawn, so I...

I'm just thinking about Reece, and wondering if anyone has heard from Leah. I know she was without a computer at one point, so maybe that's why she hasn't been around. If anyone keeps in touch with her, please give us an update. Thanks. Stacey

I though I would post the information for those who would like to send a card to Isaiah. CHOP Isaiah Frisby Tower 5 South, Rm 18 34th & Civic Blvd. Philadelphia, PA 19104 Mary's blog was pretty positive today, and I think they are seeing some improvements, so that's good news. <img...

Lauren's last blog said she was having trouble breathing, and was going to the ER the next morning. I'm just wondering if anyone knows how she is. Stacey

I'm sorry your check up was disappointing. I know 1-2% isn't much, but at least it's a gain and not a loss. You are right about the gaining weight. It helped my son so much when he put on weight. I won't yell at you, but do exercise. It should make a big difference in how you feel. Stacey