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Hey everyone been a while since we were here, my son hasnt been sick in 1 year, he has mycrobacterium abscessus, PFT's were dropping some so we are currently on IV therapy, two meds for now, amikican IV and pramixin IV plus zyvox oral and zithromax oral, he seems to be doing ok this time, last...
has anyone had a bronchscopy and did it help bring up your lung functions? My son is 19 and he is having a bronch, he had one about 5 years ago but his lung functions were still in 90's, they did it because he was coughing alot and nothning seemed to help, after the bronch they put him on IV...
Wow what a year in my house and it seems as though it is going to come in with a bang once again. We will get through this my son has gone too far to give up now, so this year we will do as we always have one day at a time and treasure each and every day. Happy New Year to all of you without...
Well I guess here we go again, we have been off the IV meds for 9 days and tonight my son comes in he has a fever of 101.5 and a cough. I don't understand we did 4 months of IV's and that nasty ***** bug is back again. I can't cry in front of him, if I am upset he gets upset. I am just so sad...
We just wanted to thank all of you who prayed for us during our 4 months with the picc line, we had it removed today!!! PFT's are up and he feels great, so it is out. I am a little nerveous it is kinda like when its in and youre getting meds you know that for the most part you are gonna stay...
<img src="i/expressions/brokenheart.gif" border="0"> graduation went great no cough just hot and we have finally done it. Got a little worried at practice the day before, he started coughing, threw up three times and ran a fever, he got tylenol and within 20 minutes he was okay. So we went to...
well we have completed 6 weeks of iv theraphy, 2 weeks of c-diff treatment, which i feel is back again because he is having fevers, cf doctor started us back on flagyl until he sees us on the 7th. His cough is so much better he can finally run around the block a few times and not cough up or...
okay so we went to clinic today, our breathing test were lower than 4 weeks ago, our weight is down by 10 lbs, that is from the c-diff we didnt know about for two weeks, so we get into the room with the doc, he is really great with us but today i had so many questions, he begins by telling me...
someone please shed some light on this, my son is 18, he currently is on iv for mycrobacterium abscessess, he is better but in the past few days if he has eaten and starts to cough, he will throw up, but only if he has eaten in the last hr, is this normal, most of the time when he starts to...
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