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Well it has been months since I have been here do largely in part to my busy life but also to the fact that we were told Ely did NOT have CF and we continued to look for answers.
Well after being told Celiac Disease ( wheat gluten) and getting our hopes up we still had no answers and she...
Just got home from completing granddaughters nasal test and we are elated.
She tested negative for C.F.
We were told that the 2 positive sweat tests should not have been done within 3 weeks of each other and especially not while she was malnourished. They did say that while she is still sick...
Recently my 5 year old granddughter tested positive with 2 sweat tests - one a 68 and one a 69. Now since 2 rounds of genetic testing has come back and no mutations have been located they are questioning her prior diagnosis. Has anyone heard of this before? She was bleeding in her bowels, had...
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