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I'm thinking about having my daughter start denufosol. What have been some of your experiences with it? I'm wondering if it is worth it at this point? She is 9 and has been relatively healthy and has good PFTs. Thanks for any advice or info. Amy

My 8 yr old daughter just started Flovent a couple weeks ago. Are there any other side effects besides thrush? She's been very moody lately and her mouth always seems dry along with chapped lips. Could these be from the flovent? What is everyone else's experiences with it? Thanks!

We are flying on Southwest this Friday. Does anyone have any experience in flying with their vest on this airline? Do we need to check it or can it be carry on? This is the first time we have ever flown with my daughter's vest so we are a little unsure of how to deal with it. Any suggestions...

My 7 yr old daughter never has an appetite. She never gets excited about any kind of food that we offer to her. We tried Periacten but it didn't work and her nutritionist doesn't recommend any of the other appetite stimulants due to their side effects. My question is......does anyone know of...

Can anyone suggest a good cold medicine for my daughter when she has a cold? I'm paranoid about what to give her b/c I don't want to suppress her cough but I know most cold meds do that. What should I give her if she has runny nose/stuffed up/ sore throat and so on. She doesn't get colds very...

Do the enzymes work the same if swallowed with dairy products...like milk and yogurt drinks? Or, should we stick with taking them only with water, juice and gatorade? Thanks! Amy

Does Periactin make you hungry immediately after taking it or does it take a couple of weeks for it to get in your system before you start feeling more hungry? I feel like I have gotten two different answers from my daughter's CF team. So far, the only effect I have seen from the periactin is...

What is the average age of CFRD developing? My 6 yr old daughter has to go back and repeat her bloodwork b/c her blood sugar was high last week. Of course, I am freaking out. Honestly, I don't know much about it. I thought it normally happened in the teenage years. Can anyone educate me...

My daughter had her clinic visit yesterday. They are always on me about her weight. I totally understand there is a link between good lung function and good weight but I am tall and skinny and my husband is thin too. Do they not take gentics into consideration when they are figuring out what...

My daughter just cultured this. I have never heard of it before. Her doctor reassured us that it is easy to get rid of. Has anyone else had experience with this bacteria or know where it can be picked up? Thanks! Amy