Cystic Fibrosis Forum (EXP)

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    Final Update

    I posted in the past couple of months about my son Jacob and our journey to find out weather he has CF or not. He appears to me to have had a "typical" history which can be viewed in my other posts, but after visiting with a pediatric pulmonologist today, we have been told in that doctor's...
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    Progress

    I pushed my Pediatrician yesterday about the genetic testing. She said that she will refer us to a pulmonoligist because it will get past insurance if a specialist orders it. She offered to send us for GI testing as well, but I told her I would like to tackle one thing at a time. She agreed...
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    Results In Finally

    Hi all, I finally got the results of the third sweat test. The first was inconclusive, the second was 53 (was told this one was different methodology and only a screen), and now the third has come back 16 on one side and 20 on the other. Dr is saying "negative". I guess I will accept this...
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    Going Stir Crazy!

    Hi all, I posted earlier this week about my son and possible CF. We got into the Children's hospital rather quickly and they did a third sweat test on him Tuesday morning. The tech assured me the results would be done by that afternoon. I have been blowing up the phones at my peds office for...
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    To be or not to be...

    Hi all, I have been lurking on this board for a few months now but never posted. Just last week I had removed the link from my favorites because I thought we were out of the woods. A little background info: I am here because of my second son Jacob, who is 20 months old. When he was 3 weeks...
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