This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!
I was just on the phone, business, and the baby began to fuss. Checked on him only to find that he had a full diaper. Not only a full diaper, but onesie, and sleeper. I said that I needed to change my son (to the lady on the phone) who thought that she could just "hold one a minute". When he...
Pending the outcome of our next pulmo visit, which is within the next week, it looks like we are going to Ambry for tests that we will have to pay for out of pocket. It aggravates me that people have to fight so hard to get testing done. Having a kid sick for so long and no one can tell you...
Okay, so my daughter, 12 yrs. old, sinus probs, pneumonia, asthma(?), tons of resp. infections, reflux, etc.. had sweat test of 31. Last week had a bron-scope & cultures and an esopho-scope with biopsy. No results yet. Pushing for genetic tests now. We just hear, "sweat test is gold standard"...
Just wanted to make sure I'm clear on this. If a pulmonoligist is a doctor with a hospital that is a cf accredited facility, then does that make the doctor an accredited cf doc? Is it all one in the same or can it be one or the other? Thanks in advance, I'm confused.
Received the results of my daughters sweat test today. They were a 31. Haven't talked to her pulmo, and not scheduled to see her again until Oct.26. Do you think 31 is high enough to push for more testing if it is not suggested by her doctor? The poor kid has been sick about every three weeks...
Still waiting for sweat test results from Friday mornig. I keep calling for results, but no one is calling back. I'm going crazy!
Okay, in addition to all of her respiratory problems, my daughter has reflux (on prevacid and zantac), her hands and feet prune up within minutes of getting in the...
Hi. I've been reading a lot, and have decided to join. i need some advice from others who have obviously gone through much of what we have. Okay, sorry for the length that this will be. My daughter just turned 12 and she had sweat test this past Friday(8/31). They said we would hear back in a...
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.