Cystic Fibrosis Forum (EXP)

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  1. R

    symptoms

    I just wanted to get some feedback from everyone. My daughter has been on IV antibiotics 5 weeks out of the last 8. She has grown over 100,000 stenotrophomonas. The first two weeks of antibiotics she was on Tobra, Ceftazadime?? and Timentin. She got better and her PFTS were back over 100%...
  2. R

    SYMPTOMS

    I just wanted to get some feedback from everyone. My daughter has been on IV antibiotics 5 weeks out of the last 8. She has grown over 100,000 stenotrophomonas. The first two weeks of antibiotics she was on Tobra, Ceftazadime?? and Timentin. She got better and her PFTS were back over 100%...
  3. R

    STENOTROPHOMONAS

    I am currently going through IV antibiotics for the second time in six weeks with my daughter. Her bronch showed over 100,000 stenotrophomonas. She has had this in the past and I was told that the docs arent sure how big a part this bacteria plays in CF. I feel like it is causing all her...
  4. R

    A mom feeling alone and isolated

    I just joined this site. I am a single mom with an 8 year old daughter Rachel. She was diagnosed at 6 month old so we have been dealing with CF for about 8 years. She is the light of my life and affects everyone around her in a positive way. She deals with her life and CF in way I wish I could...
  5. R

    A mom feeling alone and isolated

    I just joined this site. I am a single mom with an 8 year old daughter Rachel. She was diagnosed at 6 month old so we have been dealing with CF for about 8 years. She is the light of my life and affects everyone around her in a positive way. She deals with her life and CF in way I wish I...
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