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Happy Holidays everyone! I need help... What do you guys do when you are the primary caregiver and you get sick with a cold, bronchitis? Last year at this time I was sick with bronchitis, again in June and now again. Every time I get sick so does my daughter. Last year I was able to get over...

Happy Holidays everyone! I need help... What do you guys do when you are the primary caregiver and you get sick with a cold, bronchitis? Last year at his time I was sick with bronchitis, again in June and now again. Every time I get sick so does my daughter. Last year I was able to get over...

1 year ago today I was sitting in my office, my phone rang, it was Dr. Johnson... Dr J: "This is Dr. Johnson..." Me: Yes ??? Dr J: ????????????????????????? Me: ......................... Dr J: ????????????????????????? Me: (still heard nothing, heart pounding) Dr J...

To everyone touched by CF, especially those with CF... Never a day goes by without thinking what everyday life is like for you...the meds, the vest, the yuk! You all are so strong and courageous! Together we will find a cure! Stay strong! Big hugs <img src="i/expressions/heart.gif"...

Breanna had to go back into the hospital in July 23-Aug 1. 1 week stay in hospital and then PICC at home for 1 week. She was on Bactrim via PICC and seriously 2 days after PICC removed she began coughing up stuff again. Trip to the CF Clinic and another 2 week round of oral Bactrim, did...

My daughter was Dx in October at age 9, she has been in Children's Hospital three times since Oct with exacerbations. She is sick of the hospital. When she returns to school from the hospital she has peers that really do not know her but hear that she "has a disease" and always ask if "she is...

Can anyone help me on this... My daughter was recently diagnosed at age 9, I am a single Mom and have been work driven in my career for over 15 years. My daughter being diagnosed later has resulted in the need of more treatments per day, 2 are not sufficient and the Dr. wants 4 per day. I...

My daughter is 9 y/o with CF. She was just Dx in Oct at age 9 and immediately put in Children's Hospital for 2 weeks upon Dx with FEV1 52%, MRSA. She has DF508/3849+10kbC>T, PS, MRSA, FEV1 81% (currently). She went to clinic last week and again was cultured + for MRSA. Can anyone enlighten...

Can anyone please fill me in about MRSA and other things? My daughter is 9 y/o, Dx in Oct w/ CF, immediately in CHSD for 2 weeks w/ FEV1 52%, DF508/3849+10kbc>T, PS and + for MRSA. Has been great since Nov, but now sick again w/ coughing green mucus and so much, tested + for MRSA again. Her...