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I got my mutation results back from John Hopkins, came back with DF508, which I knew and M1101R. I can't really find any information on it and there are no recorded instances of it in the CFR2 database, I will be the first one in the database with it? We do know it is a Class II mutation similar...
Someone enterain me here.... this is my running theory.
Narcolepsy is believed to be caused by hypocretin cell death in the brain. It is also believed that this happens in some cases due to a autoimmune response.
Cystic Fibrosis can someone have autoimmune issues as we well know. A lot of us...
I looked it up and I think I understand but I figured I'd ask here as well.
To my understanding I can take liquid medication including saline to mix, with me on my trip with no restrictions? Do they need to see scripts? Some of my stuff doesn't have labels....
My flight is tomorrow morning. LOL.
My doctors and team reply to my emails fast! Always call me right back, I have some of their cell phone numbers. Are very supportive of my goals and work with me to do things I want to try. How fast does my doctor reply? While on vacation? In under 1-2minuntes at 4AM! Coincidence you say? Nope...
Has anyone found that the food stamp programs will give you more food stamps if you explain to them (with proof if needed) that CF requires a high calories, fat, protein diet? How to go about this?
If you don't have a gating mutation and want Kalydeco you better push your doctors NOW before 2nd quarter of 2012. I just spoke with a pharmasist at one of the pharmacies that fills Kalydeco, they are FULLY expecting after Q2 meetings a large amount of insurance companies will require proof of...
If you have a minute please refer to this thread linked below!
Thanks,<a href="messageview.cfm?catid=5&threadid=616627&enterthread=y">http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=616627&enterthread=y</a>
If you have a minute please refer to this thread linked below!
Thanks,<a href="messageview.cfm?catid=5&threadid=616627&enterthread=y">http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=616627&enterthread=y</a>
If you have a few minutes to answer this servey that would be fantastic. If you have any suggestions on how things can be improved in care or made easier possibly by drug manufactures what would they be?
<strong>What is your biggest barrier (of these given choices.)</strong>
<strong>What is your...
So let's say hypotherically... you have MSSA and PA. Your MSSA is the one that usally acts up. If you hypotherically could kill it off is it worth the risk that your PA might then spiral out of control? MSSA is typically the dominant bacteria and might be suppressing my PA. Discuss.
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