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My son is 14 months old and has CF. He has always had trouble sleeping for longer that a hour or two at a time. I am totally exhausted and am wondering if this is common in CF kids? Have any of you had experience with this. What helped if anything. I am not willing to let him cry it out so...
Hello all!
I am cross posting this from newly diagnosed.
I'm hoping that someone can help give me some insite about this. My son is 13 months old. We found out about his CF at 8 months when he got really sick. At first the enzymes worked really well (1 creon 10). Now he is up to 3 pills with...
Hello all!
I'm hoping that someone can help give me some insite about this. My son is 13 months old. We found out about his CF at 8 months when he got really sick. At first the enzymes worked really well (1 creon 10). Now he is up to 3 pills with all meals and we still have mixed results...
My one year old son was recently diagnosed with CF. His mutations are df508 which I understand is the most common and G542x. Does anyone have these mutations or know anything about this combination. Thanks in advance!!
Ok... so this is my first time here. I have a 1 year old son that was diagnosed with CF at 8 months. We are doing so much better now and I am at peace with his diagnosis for the most part.
He loves food and eating which is a big help, but we are still dealing with weight issues. I have...
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