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<P>Hi everyone!</P> <P></P> <P>I just wanted to let you know that on Friday 11/11/11, I reached a great milestone. I'm officially 7 years out of my transplant. </P> <P></P> <P>I wrote an article for the International Society of Heart and Lung Transplants. Visit <A...

My lungs are 6 years old today! I remember waking up on this exact day six years ago and taking that first deep breath. I have accomplished so much in the last 6 years. I would not have been able to do any of it without my new lungs. I'm forever grateful to my donor! Just thought I would...

Just wondering if anyone who is post transplant and has decided to have children can share their experiences with it. How do you juggle work, doctors appointments, staying healthy/in shape, cooking, cleaning, and a child? I know I want children at some point, but sometimes I feel like my...

Mercy is on NBC right now and it's showing Cystic Fibrosis and Transplant. Is anyone else watching? And anyone else miffed at how wrong they are getting it?

There has been such a plethora of bad news on the forums lately that I thought I would share some good news! Today is the five year anniversary of my transplant. My lungs have never felt better. I continue to experience everything that I ever dreamed of in life. I'm taking a few extra deep...

Hi all, Has anyone been diagnosed with PTLD? About two weeks ago I started to have difficulty swallowing. I had a Barium swallow test done and they saw something on my esophagus. After that I went to a GI doctor and had an endoscopy. They found and ulcer and the pathology report showed...

Hey guys, So I'm getting a team together to run the Long Branch Half Marathon on May 3rd. I am running it as well so this will be a huge challenge. We are raising money for the New Jersey State Organization of Cystic Fibrosis. If anyone is interested in further details, feel free to PM me...

I know there were a few documentaries about CF in the works. I was just wondering what the progress was on these and if any were released yet? thanks!

So my diabetes is out of control since my transplant. This is something that arose after my transplant so I'm really not used to dealing with it and don't do a very great job of it. I have an appointment with a Diabetes team coming up on Tuesday and figure they are going to suggest the pump to...

So I know most companies will not leave meds outside an apartment door. So my question is, for those of you who live in a city in a walk up type apartment building, how do you get your meds? My sister and I have started looking for places to rent in NYC. I would love to live in a doorman...

So I recently had my second sinus surgery (usually my doctor pulls out the polyps in his office, but this time, they were simply too deep so we had to go with the full surgery). Usually after I have either a surgery or office procedure to remove the polyps, my sense of smell comes back stronger...

Just wondering what everyone's favorite Christmas movie or show is! Mine is It's a Wonderful Life (I cry every time I watch that) and who doesn't look forward to the 24 hour marathon of A Christmas Story.

I read this in one of my friends AIM profiles today... "If life gives you lemons, make lemonade. Then find someone who's life gave them vodka and have a party." It really made me laugh and totally makes me realize that this is how I deal with my life with CF. Not only am I making lemonade...

Just wondering if any of you that are in college are on Facebook?

Hey guys- Has anyone gotten their feeding tube removed. Since my transplant i don't use it anymore and got mine removed becuase i've been eating so much. How long did it take for the hole to close up? How long does it take for the hole to stop leaking? What does it look like after it heals...

Hi everyone...its Margaret...I just wanted to let you all know that I got my transplant last Wednesday. I got out of the hospital on Friday after only nine days! Thank God for such a speedy recovery. I have never felt better in my life...I laughed without coughing for the first time and am...

Hello everyone I am new to this site. So first I thought I would introduce myself. My name is Margaret and I'm 21 years old. I was diagnosed with cf when I was three months old and I'm currently waiting for a double lung transplant. I've been listed since January and really started to read...