Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. K

    Double R117H

    Steve, My grandson recieved a positive NBS of R117H/R117H, was sent for Sweat Test which came back "perfectly normal"... "not even borderline..." per the MD. However, "due to the presence of two mutations" a diagnosis of CF was issued. He is asymptomatic at this time, but the MD says the...
  2. K

    Grandson just diagnosed with CF

    My 4 week old grandson was just given a diagnosis of CF based on positive NBS of two mutations R117H/R117H. Sweat test performed today at MCG in Augusta, Ga came back normal, however diagnosis was handed out based on appearance of two mutations - which I guess means homozygous for R117H. MD...
Top