Cystic Fibrosis Forum (EXP)

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  1. S

    Extreme headache (sinus pain?)

    Backstory, I never have sinus problems of any sort, nor many headaches. Last week my sinuses started burning really badly, right in the center of my forehead between my eyebrows. It persisted for about 3 days then went away, it was a distinct burning feeling. Tonight my forehead has been...
  2. S

    Fundraiser Idea

    I was just collecting up my trash to take out, and I have a ton of empty cans. I suddenly remembered collecting them in high school for a fundraiser of some sort, and was wondering if I could do the same thing for CF. Have any of you guys done this as a fundraiser for CF (or anything)? If so...
  3. S

    5 new antibiotics - arcticle

    Neat article: <a target=_blank class=ftalternatingbarlinklarge href="http://discovermagazine.com/2008/aug/30-5-next-gen-antibiotics-that-could-save-your-life">http://discovermagazine.com/20...t-could-save-your-life</a>
  4. S

    VSL#3 - Does anyone take this?

    I recently came across this and was wondering if any of you guys have tried it. <a target=_blank class=ftalternatingbarlinklarge href="http://www.vsl3.com/VSL3/default.asp ">http://www.vsl3.com/VSL3/default.asp </a> It's basically a really strong probiotic, supposedly works great. The only...
  5. S

    Need a new Pharmacy

    Just like the topic states, I'm looking for a new pharmacy. The one I go to now is really great about getting all my stuff filled and covered, but it's about 15 miles away from my house so it's a pain to get things from there when I'm sick. Do you use local pharmacies? Chains? I just tried...
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    Help! I'm being watched!

    <img src="http://img352.imageshack.us/img352/9427/lurkerssk8.jpg"> I go to a lot of forums in a day, but this forum has an absurd amount of unregistered users on the site. It really makes me wonder... who are all these people? I know nothing on the internet is "personal" but I'm beginning to...
  7. S

    Hypothetical question

    As more and more people are getting carrier screenings, I have begun to wonder what it means for those of us with CF. Simply put, if prospective parents get screened for CF, find they are a carrier, and decide not to have a child, it will mean less new cases of CF. Eventually this could mean...
  8. S

    Prandin + blood sugar lows

    I've been taking prandin for at least a few years and I've always had problems with lows (to the point where I often don't take it unless I'm eating a full meal that is very sugary...) Anyway I took it yesterday before my enormous lunch, and STILL was extremely low a few hours afterwards - I...
  9. S

    Saltiest foods in america

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.menshealth.com/eatthis/20-Saltiest-Foods-in-America/index.php?cm_mmc=Yahoo_Blog-_-ETNT-_-The_Saltiest_Foods_in_America-_-20_Foods_Your_Cardiologist_Wont_Eat">http://www.menshealth.com/eatt..._Cardiologist_Wont_Eat</a> Mmm, salt...
  10. S

    CF Care in other countries question

    There was an identical topic to this one that I found, but it didn't answer my questions and it went way, way offtopic. So, if you want to spew your dissertation on why socialized/single payer healthcare is evil/stupid/bad, please do so elsewhere. My questions are basically how such a system...
  11. S

    Off the compliance wagon

    The marathon that is our healthcare, I mean. I am not sure why I am even posting this, I'm not sure what sort of replies I expect, I guess I just want to vent a little? From Oct to Feb or so, I was doing my meds utterly religiously, I missed perhaps 1 or 2 doses in that WHOLE time.. and for...
  12. S

    Pain Doctor?

    Does anyone see a pain specialist for any reason? I'm kind of having the last straw here. I've had hip pain for the better part of 6ish years, and it's not getting better, instead it's getting worse. The docs haven't been able to figure out what it is, and I take vicodin when the pain is...
  13. S

    Weird mediport pain :(

    Hi all, I just started having some pretty severe pain.. where my port USED to be. This is really odd, it hurts really, really badly, but the port has been gone from this particular location (Right thigh) for over 1.5 years! It hurts when I move my leg, also. Could it be adhesions? Has anyone...
  14. S

    Do your antidepressants work?

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.msnbc.msn.com/id/23348068/ ">http://www.msnbc.msn.com/id/23348068/ </a> This got me thinking... I've known a lot of people - here and family/friends - that have been on antidepressants, and I can't honestly say that anyone has...
  15. S

    Medication interactions list

    So I was sitting out my morning meds this morning, barely looking at the bottles as usual. I took out a new Zithromax bottle today, and for the first time noticed a little DO NOT TAKE WITH ANTACIDS sticker. Now, I don't know if that has been on all the bottles and I never noticed, or what, but...
  16. S

    Walking into running

    So I've been walking for several weeks now, every day, some days lengthening or shortening my route depending on the weather or how I feel. Finally this Monday I felt like I could do more, so on the last stretch of my walk, I jogged a bit. Ohhhhh boy did I regret that. Shins are still hurting...
  17. S

    Great Strides fundraisers for Adults

    I posted this in one of the other numerous GS threads but it seems to have gotten buried and overlooked. I was wondering what you all do as adults for Great Strides fundraisers? I see plenty of parents here that stick up a kid's photo somewhere, or send out cards or letters like that. I don't...
  18. S

    Do you have a cat?

    So this is kind of OT to be in the adults section... but I figure if I let all this dust sit around it's going to turn into a lung topic eventually <img src="i/expressions/face-icon-small-tongue.gif" border="0"> I've been searching high and low for a non-clay dust free litter. So far I've...
  19. S

    Does anyone do rock climbing?

    I was talking to some friends from college the other day and one of them has gotten into rock climbing. It seemed neat to me, and I liked the idea of "me versus the wall" and setting my own pace. I was just wondering if anyone else does this for exercise/strength training and how you like it...
  20. S

    Do you have a Pulse-ox (O2) machine?

    When I saw a lot of you comment that you got one covered by insurance, I asked my doc if I could get one as well. I'm not even on O2 at home since I'm generally above 88 unless I'm really sick, but I told him I wanted to use it for exercise (which I do) since I'm starting to walk, and hopefully...
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