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I am thinking about trying to put together a recipe book with high protien high fat recipes and suggestions for adding calories/fat/protien to foods for new CF parents.
Any good recipes out there?
Ideas for adding calories?
Other thoughts?
I suspect this topic has come up before, but I am curious about what other families have done.
As background, my daughter Rebecca who is 2 has CF. She is adopted, and there is noone else with CF in our family. Rebecca is not colonized with anything at this point, although she does have severe...
This is kind of a wierd question, but I know alot of people on this site do great strides and other fundraising for CFF so I thought I would ask here.
This year was the first year we were involved with Great Strides my daughter was diagnosed with CF 10 months ago. Our team did well we raised...
My daughter is 2 and for the last few days has been crying that her vest is to tight. She has not grown at all recently, and it does not feel any different to me, but I realized I do not know how it is supposed to fit and how to tell if it is to tight or not. Any ideas?
My daughter is 2 and was Diagnosed with CF at 19 months. When she was 2 days old she started vomiting, when she was 3 days old she started coughing. She had persistant cough and vomiting until December when she was diagnised with CF. She also had severe failure to thrive. Our doctors kept...
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