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It has only been a couple of days since I updated my blog and all was good when we left..We had clinic appointments for the 4 CF'ers and we left with only one concern, so I thought. Dylan ended having an infection in his small airways and is now a treatment of antibiotics. We can deal with...

It was only a couple of days ago when I updated my blog and said things were good and we only had one issue to deal with out of 4 CF kids...to me, thats great. Ok so Dylan has an infection in his small airways so we're treating him with antibiotics. I get a call while at work yesterday from my...

Hey everyone!! Has anyone ever had to deal with constant Staph infections around the G-tube site?? After Dylan gained all his weight, the first tube was to small. So they put a bigger one in and that seemed to work great until he started loosing weight even while feeding. Now this one seems to...

Hey guys, I really need some input on how to help my daughter. Her life was pretty amazing up until almost a year ago when she was diagnosed along with 3 of her other siblings. Since they started her on the treatments her feeling amazing started to go away. In the last 5 months she has been...

Hey guys, It's been so long since I have had to write and I thought things we finally becoming "normal" around here. If you remember, my 15 year old was very sick back in November and since then she just hasn't been getting better. She is becoming ill more often and just isn't herself. The...

Hey everyone!! Hope all is well in the land of the CF Forum!! Everyone is good here and doing really well. Christmas was great but I am so glad its over. My daughter has put this project off till the last minute and we need your imput. She has to do report on a CF drug that has a contriversal...

I can even express how excited all of us are. DYLAN GAINED 8 POUNDS IN ONE MONTH!!!! And grew 2 inches since August! How cool is that!! Finally, some good news and he even looks a little chubby in the face!!! I LOVE IT!!!!! Just had to share....hehehe All the other kids are doing well too...

Hey everyone!! This time its not Dylan....thats a first. Its my daughter Stephanie, 15 with CF. I have made the appropriate phone calls and they have increased her rescue meds and PT to 4 times a day. I know that CF can go from one extreme to the next and that is what is going on with Steph I...

Finally, Dylan is healing well. I brought a copy of Dylan's CT-Scan to our appointment today so the GI doctor could see it. He showed us exactly where the infection was. It was right in the muscle surrounding the tube. The muscle was really big compared to the others. I like our GI doc because...

Its been 2 weeks since he has had the tube put in. The first week went really well as soon as the pain subsided. One week from his surgery he decided to he was feeling good and went to the next door neighbors and played the Wii. Not good for someone who just had surgery on their belly. # 10 pain...

Hey everyone, Well, Dylans surgery went really well. I think he was under for maybe 15 minutes. Our Doc was super fast!! But they did go through is mouth so no stitches. (even better!) They got him into recovery and he woke up way to early. He was hurting a lot so they started morphine right...

I posted this on another page. My 10 year old is going for his G-Tube operation on Friday and all of us are a bit scared. This morning while getting ready for school and I was rounding up socks for the boys, my son, out of no where came to me and asked "mamma, am I going to die?" For the first...

Well, friday is the day. I am scared as hell for him. Everyday we seem to hate this disease even more. After speeking with his surgeon we feel better about it and I know after a few months it will just become normal. But I cant seem to shake the overwhelming sence of saddness that I feel. It has...

Hi there, I just had to share some of our photo's from our Great Strides walk and the pictures of our heroes....Also, just some pictures from the 4th of July and Dylan's Birthday. <a target=_blank class=ftalternatingbarlinklarge...

Hey everyone, Its been a great 2 weeks and I needed share it along with some crap that I had to deal with tonight. We just attended our very first Great Strides walk as "Holm Heroes" and we were able to raise $6000 in about a month and a half!! HOW COOL WAS THAT!! We had a ton of help and a...

Hi there everyone... We will be walking in the Great STrides walk on Sept 21st and are in great need for an awesome team name. We currently have "Team EJ" and its jut not good enough. Keep in mind we have 4 children diagnosed so we cant use just one childs name. HELP!! Please post your...

Hey everyone, I just wanted to post an update. We took our 3 to their first clinic visit yesterday. We were there for 4 hours. Whew! what a long day. We left at 9 and got home at 9. Anyway, Ryan our 5 year old looks really good. When we took him into the clinic last month he was below the...

We received the phone call today that we didnt exactly expect. 4 out 8 of our children have been Diagnosed. The genetic councelor is calling us tomorrow in regards to carrier status. I really dont know what to say, there has been a lot of crying and worrying. Tina

I created this video as part of the awareness we are trying to get out. If you would, watch it and let me know what you think. Be honest. If its too long, to short, not enough info, things like that. I want to get it right!! www.holmfamily1992.blogspot.com Our video is there on the right...

Hey there everyone, We got back home around 3 this afternoon. It was a long trip thats for sure. First, the last time I spoke with our social worker at our clinic, she told me that she had spoke to the manager at the hospitality house and he said he would move in 4 roll away beds for all of...