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Crazy I know right? Well, in 2 days I have to go. I spoke with someone from the CF hotline and he gave me alot of advice but I was wondering if any of you parents have had to deal with this? If so, how did it go? I did get Makailyn on a 504 this year but they refuse to put on there that she is...

Hi everybody! Happy New Year! Makailyn was released from the hospital today after being admitted Sunday for pancreantitis. Her symtoms started Christmas morning when she woke up vomiting and it lasted ALL day. I took her to the ER and her blood work showed her white blood count was elevated...

Hello everyone! I have some crazy news! My daughter's cf doc sent us a letter saying she will no longer be my daughter's doc anymore! The letter was sent the monday following our 504 meeting. When we called for a reason, the lady said that we were trying to get the doc to say she needs to...

This is a follow up for a post I did mid october regarding problems I am having w/my daughter's school. Last Friday we finally got our much awaited 504 meeting only to be shot down once again. This time the principal was there and she says there has to an academic need for a 504! This is so not...

The other day was my daughter's 3 mo ck up at the CF doc. I had some concerns regarding her stomach problems. She always complains of her tummy hurting and from what I've noticed from reading other peoples tummy problems is that it is related to enzymes but my daughter is pancreatic sufficient...

Today I talked to my daughter's teacher today about my daughter's homework and grades and stuff. She is 7 and in the 1st grade. She has had to miss quite a bit of school already. We are still trying to figure out this whole public school thing with having cf and all that comes along with that...