Cystic Fibrosis Forum (EXP)

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  1. C

    CF Awareness Day

    So the other day on Facebook there were a few people that were saying it was CF Awareness day, was it really? I didn't think it was in January... Does anyone know when the actual CF Awareness Day is?
  2. C

    Pseudomonas

    Our DD has just cultured PA for the second time in a row. She had NO symptoms the first time and still has no symptoms. I was just wondering how common it is for them to have no symptoms and if any of you could shed some light on the subject. The first culture was done in July (took until mid...
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    Time for a vest...

    So, at clinic today they measured Cammie and said that she is big enough for a vest. They gave us some information on all three and told us to choose which one is best. I was just wondering if anyone had some input on which one worked best/worst, easiest/hardest, etc. My husband looked them all...
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    Baby Food Question

    Okay so my hubby and I are having a difference of opinion and I am asking how you all dealt with this... Our 14 month old is still eating baby food for all her meals. We give her table food when we sit down and she self feeds but then she still wants "her" food after. I give her lots of snacks...
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    Normal Oral Flora?

    Okay, so tell me what this means? Does it mean that she has bacteria in her mouth that is growing or does it mean there's nothing growing?
  6. C

    The best spoon ever!

    I just wanted to share with you all that I have found the greatest spoon ever created! It's made by Boon. It holds about 3 ounces of applesauce (or any kind of baby food) and has a hole that allows you to squeeze the applesauce out of the chamber onto the spoon. It's great b/c you can fill it...
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    We just started Pulmozyme

    Okay, so Cammie just had her check-up the other day and she's great, she's really really great. So why are we starting Pulmozyme? I just hate that we have to start this so early. It's so hard to have to put her through this. I thought that we wouldn't be starting this until at the earliest 2...
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    Fun Night Out in Jax, FL

    Just wanted to let everyone know that this Thursday (Aug 21st) @ The Grape (St. John's Town Center) there's a wine tasting to benefit CFF. $10 buys you wine and appetizers and it goes to CFF to find a cure! Anyone in the area should try to make it out! Bring your friends. 6p-8p P.S. It's also...
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    Pictures...

    Okay, I'm new to this site and I don't know how to add a picture to my signature... Help!
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