Cystic Fibrosis Forum (EXP)

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  1. M

    Success killing Stenotrophomonas Maltophilia with TOBI Pod Inhaler

    We've had a rough year dealing with the colonization of a new bug, Stenotrophomonas Maltophilia which is quite med resistant. They did an experiment on my daughter's sputum in a petri dish with TIP(TOBI Pod Inhaler) which is normally used to eradicate Pseudomonas Aeruginosa. and it killed some...
  2. M

    Frustrated with PFTs - Need Suggestions.

    My 10 year old daughter's PFTs have always hovered in the 80s and 90s. She's never had a lung infection but in the last year her PFTs have dropped dramatically into the 50s. Our doctors can't determine a reason. She's tested negatively for all of the following: Nontuberculous mycobacteria...
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