Cystic Fibrosis Forum (EXP)

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    Getting the most out of the vest

    For those of you who have been using the vest for a while, how do you 'maximize' its impact? I've only tried on in the Dr's office at this point, so I'm not really sure what to expect. I guess it shakes the secretions loose, and you then use breathing techniques to move the stuff up to where...
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    What are the most common inflammation reduction meds/treatments?

    What are some of the meds or methods used to fight chronic lung inflammation in cfers? I'm taking serevent, and just recently started on a daily oral antibiotic the name of which escapes me just now.
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    Not liking the TOBI..

    For those of you who use TOBI, what side effects do you experience? edit- It seems to leave me short of breath as well.
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    Pari LC with mask for 'hands-free' operation

    I like to use the computer while I'm nebbing, whether it be reading blogs or playing WoW. I thought maybe using a mask with the Pari LC neb would be really convenient, but I'd like to hear from anyone using this setup or something similar.
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    I love to sing (mostly in the car and the shower), and I think it actually helps bring stuff up.

    I love to sing (mostly in the car and the shower), and I think it actually helps bring stuff up. I'll never have a stage career, obviously, but I enjoy singing, and often I find it seems beneficial. I think that it's not too different from the way an acapella works- getting the air moving and...
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    proper order/timing of Neb meds...

    I'm wondering where it should fall in the order I do my neb meds. Currently I do pulmozyme and saline one right after the other, then my acapella. I would think that it would make sense to do the Tobi after the acapella so I'm not coughing out the Tobi. Is this correct? Should I wait for a...
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    Do you have Pseudomonas Aeruginosa?

    This seems to be the bug that keeps showing up when I get sick. I guess it never really goes away. I tried Tobi in the past, and didn't like the side-effects, but I'm going to try it again to see if I can get this crap under control. How is PA affecting you?
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    Exercise making me sick?

    I've recently taken up running again. I'm getting in to it gradually, alternating running and walking. Yesterday I went for about 40 minutes, with about 7 minutes of running, total. I felt great when I finished, but within a few hours of getting home, I felt a cold/sinus infection starting up...
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    Any marathoners with cf here?

    Just wondering if any of the cfers here have run a marathon. It's an idea that's been growing in the back of my mind, so I'm looking for some guidance. As of today, I'm not a runner. Used to be. Kind of.
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    Ibuprofen to reduce lung inflammation

    I've read a couple places that you can reduce lung inflammation with appropriate doses of ibuprofen. Anyone doing this, or have any comments on it?
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    cf infants and attachment/bonding problems

    Hello- I've come across a few snipets here and there about studies that have been done on infants with cf and the likelihood/frequency that they may experience bonding/attachment problems with their mothers. The general idea is that an infant that has constant physical discomfort may not bond...
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