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Hello everyone... long time ... but still here. With my familie we are planning going to New York, but know we are planning going close to Wesrchester Hospital that have a cf center. does any one goes there?? i need to contact a doctor or someone from the cf center. thank you

Hi everyone.. long time with out writting, but still checking the forums every single day. i have the chance to go to New York with my daughter.. HURRA¡¡¡ (remember I am from Chile, South America) at the end of October. So I have a lot of questions, but the most important if you know any CF...

hy,... long time without writing, but always reading all the good topics that here are. my daughter is four and a half, i think that she is starting to realized that not all kids take creon, or do cpt every day, and all the cf issues. in my house we speak about Cf in an open way, but i think is...

this week my DD has to apply to different private school to go next year. Some are bigs, some are small, some are really challenging, other are more relax.. The thing is that she is well,mean like any other kid, some colds time to time, but in general in good shape... but with cf you never know...

my dd is again with a cold, or something, not in her lungs, but her nose is always runny. So again antibiotic (three weeks ago she finish 21 days of other antibiotic), like three diferent medicines for the nose, and XR, and go to the othorhino.. and ok, i do all what is needed, but I just want...

Something has change in this weeks, i don´t know why and how. She started with a cough, we did a sputum culture and she has haemophilus parainfluenzae. The doctor start treating it before the result with something similar lo "keflex", so is more than enough the antibiotic. Now she is better but...

Yesterday i took my daughter to the doctor because she has a cough and a runny nose since september (we are in summer now). He ask me to do a culture to her, and then give her Curocef. In this year she has take 3 times antibiotics, two times ceterizina (cefamoz) and now this. The first time was...

today I receive her sputum culture and says she has staph. She don´t have any syntomps, and the bug appear in the second day of the culture, at the begining nothing appear, do you thing that this means something? well, what your doctors give to you for staph?. sha had it two years ago as well.

dear friends, all of you that know me and the ones that don´t: i havent write in here since.... , well long ago. Well i have only good news , my baby born a month ago, she is a little beautiful lady perfectly healthy, without CF. Yesterday we did to her the sweat test, and yes, she don´t have...

hello everyone, havent write for long time, but i have read you all almost every day. I am 36 week pregnant, and even thou i have had a great pregnancy, havent really think about cf, this last few days something inside of me is changing... i am getting nervous, i dont know if iwill be able to...

hi everyone long time without writing, but never stop reading. we are giving to my daughter aquadek, but it smell so terrible that is imposible to mix it with her dessert or anything, she always notice it. What do you do? do you think aquadek is much better than adek which she loves? Happy...

Does anyone knows if the urine infectin is some how related to cf? my daughter has a urine infection and today is her 5th day with antibiotic and she start fever again. She dont want to eat anything, and she has a big cold as well, but her lungs are ok. Doctor tell me to wait a couple of days to...

yesterday we receive her GI blood test. Her liver numbers weren´t good. I havent been with the doctor (I call him any way), but i cant wait to ubderstand what is happening. He told me at the phone that it shows that we should control her liver but nothing to do at the moment. please tell me...

Yes, no doubt I am pregnant. Unbelievable, amazing, strange, nervous, unbelievable, unbelievable, unbelievable.... And the best thing of everything is that at this point CF or not CF is not an issue. We are expecting our second child that is all what matters for us. I thought that if...

I am just wondering if my doctor is ok in my daughter treatment. She (19 month) doesn't receive any medicine, except for creon and Adek. I give her a lot of natural medicine (homeopathy) and her physiotherapy daily. She has been ok, but I am scared that maybe she has a bug inside her and we...

is the first time i write in the forum (really second i ask ambry about the mutation), but i have been reading it since my only daughter was Dx 6 month ago. i don´t speak much english, nor write, but i will try to do my best. she is a year and a half, since she was 4 month she started having...