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My husband has double delta f508 mutations but has managed to make it to the age of 30 without having to have IV antibiotics or step foot in a hospital. I think we both prefer to think of him as not being sick. Well, around his 30th birthday when he started orkambi, his numbers did a nose dive...

My husband has cystic fibrosis. Whenever he spends the day outside in the warmer months, or even in the colder months if he is active, he ends up with red irritated eyes for days from the salt dripping in his eyes all day. This makes him not want to spend so much time doing stuff together as a...

My husband has been thinking of getting on the phase three trial of lumacaftor plus ivacaftor. However we both have some reservations. His mutations are both delta F508. He is 28 years old. He has an FEV1 of 75%. This has been stable for the last decade. And his enzyme levels were in the...

My husband has cystic fibrosis. We have 3 kids. The oldest is 4 (Yay adoption from foster care! The quick way to grow a family) and very interested in getting a pet. I was thinking 2 female rats would make great first pets. However while researching them, I saw they can be susceptible to...

My boss went to a conference and one of the topics was about B. Cepecia and cystic fibrosis. Knowing that my husband has CF, she listened. She said that onion rot, like the nasty stuff you peel off the outer layer of an onion before using it for cooking is the same B. Cepecia that causes...

My husband (age 24) has cystic fibrosis. We are looking into adopting children from foster care. Some of the children have severe asthma. My husband has had a positive sputum test for PA once years ago but his infection must not be real bad because the sputum tests since then have come back...

My husband finally had his genotype done a few months ago at age 23 and it ended up being double deltaf508. We were thinking that since he doesn't need enzymes and wasn't diagnosed until age 11 maybe he had a less serious mutation and we wouldn't necessarily not be able to have children without...

My fiance has cystic fibrosis. We just bought a house and I am picking out a stove. I generally prefer gas stoves but I saw something a few months ago about how they have been linked to decreased lung function in asthmatic children. After reading the entire article, it looked as if they were...

My boyfriend has cystic fibrosis and I have been trying to find out more about it. He had described his lung function numbers before as one measuring his upper respiration (numbers around 90) and one measuring his lower, smaller lung areas (numbers around 70). He doesn't know the names for...