Cystic Fibrosis Forum (EXP)

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    we got our AMT clamps

    we finally got two of them, personally dropped off by an apria representative. it took a 5:00 am phone call this morning when we discovered yet another pool of formula. madi has had the worst luck with this whole g-tube thing. it has done wonders for her weight, and overall health, but it has...
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    g-tube dependant

    i was just wondering if anyone else's child is g- tube dependant. madi was overdosed on metachlopramide after her g-tube surgery, which caused her to vomit a lot. it's been almost a year now and we have her to where she only vomits 0-3 times a day. but because of this she absolutely will not eat...
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    we are getting a vest!!!

    hopefully in the next week
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    madi's percussions

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=VvwQw-rhhBs ">http://www.youtube.com/watch?v=VvwQw-rhhBs </a>if you cut and paste it it should take you to my youtube video of madi's percussions. if it doesnt load, look up user ajordan8686 WARNING-CONTAINS...
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    feeding pump emergency

    can anyone help, my daughter has cf, she requires an overnight feed and has lost out on some of her past 3 feeds because her tube disconnects from the bag. we cant get an amt clamp until the end of june and i was wondering if anybody had a spare one they could give. we live in the...
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