This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!
Hi everybody! I was put back in the hospital on Friday. My FEV1 was down to 38%--its lowest ever. Up until this May my Fev1 had never been below the 50's. We think it is probably just the psuedomonas flaring its ugly head again, but we just don't know. I had been stable so many years and now...
I am going tomorrow for my yearly check-up. I will be having a CT scan, stomach ultrasound, dexa bone scan, pre/post Pfts, lung volume box, and blood work. I already have butterflies in my belly and am praying so hard for good results since I am still way below my baseline.
Please keep me in...
Hey Everyone! My doctors have finally decided to let me try inhaled Colistin since my PA is multidrug resistant. The instructions on the box was not clear so I am wondering if yall could tell me what you all do.
I was given vials of 150 mg Colistimethate and 4mL vials of sterile water and...
Hey everyone. I know that this was a topic that has been visited many times before but after a long bout with a very resistant psuedomonas strain that is still flourishing in my body I am thinking about starting some natural supplements in addition to all my regular routine.
I think Faust is...
I was just wondering if any of you have obtained handicap parking stickers and how sick were you when you recieved them.
My lung function is down to 42% and I do have some trouble walking. This has not been a concern to me until now--my son is starting kindergarten and I do not know if I will...
Hey. I was just wondering if anybody could recommend a good CF doctor in Georgia or South Carolina? I have went down pretty fast in the last 2 months and I feel like my doctor does not know what to do. (I do love him to death though--having a little second opinion guilt.). The CF center I go...
Hey I'm Ginger and I am a newcomer to this site. I was dx at 11, I am 27 yo, married, and have a five-year old son. My FEV1 has been baseline at 57-61% for about the last four years but in the last month in a half I have dropped to a FEV1 between 41-43%. After four weeks on iv cipro &...
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.