Cystic Fibrosis Forum (EXP)

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    G Tube questions

    My daughter is 15 months old. Her CF doctor talked about doing a G-tube because her weight is in the -5% for her age group. My biggest concern is if she really needs it.. Im little, Im 22 and weigh 97 pounds and Im 5ft tall.. so can she just not be like me, a little person? She has a great...
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    How to start a foundation??

    I know this is on topic, but I need some help. I would like to start a foundation in honor of my daughter. I want to help raise money for research, give scholarships to those with CF, I just want to help. I not only want to help for my daughter's sake.. but others who are battling CF. I was...
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    Raegan Alexis

    Well, first off I am a young mother (21) of two beautiful girls. They are only 15 months apart. My husband left for the Navy 6 weeks before Raegan was born. Leaving me to not only care for our first child, Makenna.. but very pregnant with our second. I gave birth to Raegan on May 9, 2008, with...
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    How to start a foundation??

    I was told that I could start a foundation at any bank. Im not really sure on how to go about doing this. I was also told that any donation would be tax deductible. If anyone has any info. please let me know. I want to have all the info. I need before going to a bank, or If I can even go to one...
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    Combination of 2184insA & Delta F508

    My daughter, Raegan, was diagnosed with CF at 3 1/2 weeks old. She is now 4 months old. She just started taking enzymes last month. She was having trouble with them, her body just passed out the "sprinkles" in her stool (Creon 5). She got put on a new kind, so far so good. She maintains weight...
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