Cystic Fibrosis Forum (EXP)

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    Sputum cultures

    When I go to the CF clinic for the first time they will do a sputum culture. I've never had one before. First, do you have to actually bring something up to do it? I'm not sure how it works. Second, if your sputum is clear/white, can the culture still show bad bugs? Mine is only colored...
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    DIY Chest PT

    Hi Everyone, I'm still awaiting my first appointment with the CF clinic to figure out my final diagnosis and get a CT scan of my lungs. Right now I'm starting to come down with something and I feel that rattling in my chest and shortness of breath - I can feel that there is stuff that needs to...
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    Question about reflux & late diagnosis

    Hi Everyone, I posted here a while ago about being diagnosed with a "mild variant" of CF (I know, I know, the mild thing is a hot topic), and then when my doctor passed my records on to the CF clinic they said that my second mutation/variant doesn't always cause disease, so they would need to...
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    R75Q variant - does it mean anything?

    Hi, I posted this question for Steve in the Ambry thread but thought I'd put it to all of you, too... My allergist had me tested for CF because she couldn't figure out why my cough & sinusitis has been getting worse for a few years. After a borderline sweat (conductivity) test, she ordered a...
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    Questions about adult diagnosis

    Hi everyone, I was just told by my allergist last night that I tested positive for cystic fibrosis (I guess they found 2 gene mutations). I'm 32 and have had chronic sinus issues my whole life, and a cough that was diagnosed about 10 years ago as cough-variant asthma. I was shocked when this...
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