Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. K

    Mrsa

    My daughter is now 8yrs old and cultured MRSA in her throat culture but because wasnt sick and wasnt told till her 2 month checkup in Jan.Dont know about Jan.cultures nobody called .What should I exspect?Should I be concerned?
  2. K

    Mrsa

    My daughter now is 8yrs old and recently cultured MRSA in her sputum.Can anyone tell me what happens culturing this.The CF Clinic wasnt to concerned.She has never had a hospital stay for any cleanouts or anything.She has had tubes put in ears,they never fell out so after 3.5 yrs they had to go...
  3. K

    Rare mutation 991_995

    Does anyone have this mutation?We didn't go through ambry. genetics but another lab and they found it but in there registration for genes they olnly found one other person with this genetic mutation. Katina
  4. K

    Allergic to formula

    My 5 moth old was diagnosed with cf at 5 weeks old. At 2 weeks we went for a check up and I brought it to there attention when she ate she sounds very respy in the back of her throat. They told me probably reflux. So her next appt. The same thing except she isn't spitting up so no med. Then at 5...
  5. K

    5 month old withCF and got the RSV virus

    My 5 month old was diagnosed with RSV in the beginning of March. Her lungs stayed clear thank goodness. They said that she could have lingering efects of it for up to 3 months or so. Well now going on 2 moths she seems to be throwing up lots of mucus and has just started Zyrtec for allergies...
  6. K

    need to get some info

    Hi, I am a mom of a now three month old with cf and a 3year old and 8 year old who have to have a sweat test Tue. 22. They have always been healthy but since our youngest was diagnosed with a new born screen they have to have it done. I seem to not be scared or anything about Saydie having cf...
  7. K

    Positve sweat but caan't find second cell

    My 2 month old has one of the F508 mutated genes and her sweat test came out positive. They did another blood work to check for the other cell for the next 150 or so other most common cells and nothing came up. So I asked them to further the tests so they are going to but they said she is 1 in...
Top