Cystic Fibrosis Forum (EXP)

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  1. J

    Frustrated

    So we have been very lucky to have a very "healthy" baby thus far. Yeah, she spent her first 17days in teh NICU after she had surgery on day four for her MI. 17 was a very short stay from what I have heard. BUT Josephine had elevated liver enzymes at around 1m of age. She took Ursodiol...
  2. J

    Feeding my almost 9m old

    So, I exclusively BF my daughter until 7m when I started back to work two days a week. At this time I noticed my milk wasn't as plentiful and I worried that DD wasn't getting enough to eat. At this time I started pumping and bottle feeding. Fast-forward two months later and I only pump out...
  3. J

    IVF/PGD

    I know this is a very controversial topic so please only postive responses, thank you. Our daughter is 7 months old and we were wanting to have our kids around 2-3 years apart in age. So we want to start figuring out the process. So a few questions! 1. How much did it end up costing you...
  4. J

    IVF/PGD

    I know this is a very controversial topic so please only postive responses, thank you. Our daughter is 7 months old and we were wanting to have our kids around 2-3 years apart in age. So we want to start figuring out the process. So a few questions! 1. How much did it end up costing you...
  5. J

    To adults and teens with CF

    My daughter is 4 months old and was diagnosed with CF after being born with a meconium ileus. She is my world and I love her so much. Beside her being skinny and taking medications you would never know she was "sick". My husband and I want to have more children. We want our daughter to have...
  6. J

    Breastfeeding

    Sorry, but I needed to vent my frustrations to someone who understands what I am going through. We just had our CF Clinic appointment today. We have been going every three weeks since Bug (Josephine) came home from the NICU. Bug has been steadily gaining weight. She came home mid Novemeber...
  7. J

    Having more children

    My daughter was born October 28, 2008, on October 30 we found out that she had a meconium ileus. November 7th we got the positive CF results back. We were blindsighted. There has been no history of CF in either family. We had always planned on having more children and now I am torn. I love...
  8. J

    Clinic "out of network" for insurance

    Just got a $300.00 bill for my daughters clinic visit. Even though there is only one clinic in the state (Oregon) we have to pay for out of network. Any one else dealt with insurance and this issue?
  9. J

    Enzymes

    We just upped my 7 week old daughters Creon to 3 capsule each feeding yesterday and I can go up to 4 capsules. How many feedings should I wait to see a change in her stools before I increase by half a capsule? Her stool is still looking kinda oily... but I definately am not an expert and don't...
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