Cystic Fibrosis Forum (EXP)

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  1. C

    High Blood Pressure

    Since transplant, my blood pressure has shot up, which I know is a pretty common side effect of <span class="J-JK9eJ-PJVNOc">Prograf. <span class="J-JK9eJ-PJVNOc">Pre-transplant, I was in the nice, low 105/65 range. Now I'm averaging around 130/85. My doctor doesn't think I should start taking a...
  2. C

    Adjusting to a new life

    How do you adjust from being a cystic fibrosis patient to a transplant patient? I am planning on going home from the hospital tomorrow following my transplant and I don't know how to be a transplant patient. I know CF. I don't know transplants. Did you easily fall into this new role? Like does...
  3. C

    Working after transplant

    It has been drilled into my head that post-tx life is filled with doctors visits (for awhile anyway) and expensive co-pays. Have you been able to support yourself or do you rely on your family/spouse's income? Could you go back to work? Could you go back to the same job that you had before or...
  4. C

    Telavancin

    <DIV>I was wondering if anyone had tried <SPAN style="BACKGROUND: yellow" class=J-JK9eJ-PJVNOc>telavancin</SPAN>, a relatively new synthetic spin off of <SPAN style="BACKGROUND: yellow" class=J-JK9eJ-PJVNOc>vancomycin</SPAN>, to treat their <SPAN style="BACKGROUND: yellow"...
  5. C

    Diabetes...maybe

    I'm wondering if this is a weird CF thing...A couple of weeks ago my doc had me do an oral glucose tolerance test as part of a search to figure out why I wasn't bouncing back after an exacerbation. My 2 hour blood glucose level was 240, well into the diabetes range. However, my A1C was 5.6 aka...
  6. C

    CFer around a new baby

    Do newborns fit into the category of "immunocompromised people who we can get sick" as their immune systems haven't had time to develop? I ask because my cousin is supposed to have her baby next week and I would really like to be waiting at the hospital with the rest of my family. The last...
  7. C

    Invasive aspergillus...ugh

    Just to be clear...this is not the normal way for aspergillus to infect CFers so I'm not trying to make anyone paranoid about growing it. I've cultured aspergillus a couple times before with no problem. I'm not allergic and my IgE levels are currently super low. My FEV1 has been down since...
  8. C

    Spreading MRSA to non-cfers

    I've been colonizing MRSA pretty much forever. I know that I'm not a risk to the majority of the population, but my bf had cancer a few years ago. I have made him swear up and down that his immune system is ok (starting about 20 mins into our first date lol) but he sometimes has his doubts...
  9. C

    How low is too low?

    For people who have/have tried to adopt, how much lung impairment will adoption agencies, etc. tolerate? Going by some of the older posts it almost looks like they'll only let you adopt if you were functioning well enough to have a baby naturally if you wanted to. Also, what are the chances of...
  10. C

    Getting back to work

    How long did it take you guys to get back to work, or at least back to living a semi-normal life? My doctor said that I should probably start thinking about making contact with a tx center because if my FEV1 continues to go down at the rate that it's been going for the past year I could be...
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