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After being rejected by Mass General (MGH) my son (26 homozygous for DF508 and colonized with NTM that is not sensitive to macrolides) we are now at Duke hoping they will accept him. Duke seems much more aggressive than MGH. If they list him (please, please, please...) we will have to relocate...
Hello,
My 26 year old son is being evaluated for transplant. Many centers will not consider him because he has m. abscessus (he is otherwise the perfect candidate). Three centers have agreed to evaluate him. He has completed the rigorous evaluation at one hospital but was rejected because his...
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