Cystic Fibrosis Forum (EXP)

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  1. C

    best way to gain weight?

    I'm 19 years old, i was diagnosed w/ Cf when i was 3 months old. ive always struggled with weight gain. just this past yeah i got up to about 98 lbs. probably the most ive ever weighed. but about 2 months ago my weight started to drop. i havent been in the hospital. but i think its getting time...
  2. C

    VX-770??

    What does anyone know so far about this oral pill? I recently participated in Great Strides Walk for CF and was told about this new therapy which recently entered a Phase 2a clinical trial. They say is could be one of the most promising drugs yet. Just wandering what others had to say about it...
  3. C

    sinus surgery?

    I am 18 yrs old female w/ CF. I was wandering if anybody could tell me at what point was sinus surgery necessary? I have 1-2 PICC Lines every year. My inection always seems to start as sinus & allergies, then it moves into my chest. Can anyone give me some information about this?? Casey ADD ME...
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