Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. K

    Warning to those with the A455E mutation

    Hi, I have been waiting 8 years for Ivacaftor to be approved for residual function CFTR mutations. The day finally came on May 17th and soon after, we had my son signed up and taking his first dose. We did this with a little trepidation based on the results of a small N-of-1 study...
  2. K

    FDA slowing progress

    The recent news articles about two big CF drugs not making it to market because of the FDA have left me a bit nervous. I have to wonder what impact this will have on the pharmas that have products in the pipeline. I believe in safety first but it is frustrating to see setbacks like this with...
Top