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Hi everyone, I'll make it short: I've been coughin blood regularly for about 3 weeks now. It's not much, more like a 50/50 mix or even less. What concerns me is that its just been so regularly. This year I had like a 3 month break from coughing blood and now it started again. In the past few...

Hey Guys, I would like to know your opinion about drinking alcoholic baverages. Just to see is the symptoms are the same. Because, everytime I drink a few Beer, I can just feel how my lungs dry up. Weird thing is that every single time I drink, I start coughing up dark stuff. Everytime! And the...

Hey Guys, just having some thoughts about the VX-809 Drug for people, who have the Delta F508 mutation of CF. As you may have read on my other post, My FEV1 is quite low, around 45%. So I was wondering, what will VX-809 do for me and for others? Will it totally compensate the CF Gene defect...

Im 20 now and my fev1 is 45%. My story is, that when I was around 14-15 years old my fev1 dropped from 85% to 45% and ever since, its been this low. My lung CT looks for these circumstances pretty good. Thus my lung function should be better. A few weeks ago i went to the hospital because i woke...

Hey Guys, yesterday night I was hiking with friends in the woods uphill and as you can imagine it wasn't really easy either. Although I must say, I still had some stamina going up hill, but not as much as my friends. Anyway, it was a lot of fun and we did it all night, we just came back today...

Hi everybody! This is my case: When i was 13 years old my lung function was at 101%! At that time I had a pneumonia a few years ago. I had pseudomonas and b.cepacia (sry if i make mistakes I'm german) multiple times and every time I got it I was able to get rid of them. When I was about 16...