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I wont go into all the hairy details, but basically for about the past year now, ive had bowel issues, and theyre slowly getting worse. I had a history of bowel obstructions, but after surgery about 8 years ago, I didnt have any other problems. Now, every 3 months im in the hospital for bowel...
So, obviously I have CF, but I havent had a genetic class in forever. In order for my kids to have CF doesnt my husband HAVE to be a carrier, and even then its only a 50% chance our kids will have CF? If hes not a carrier, then my kids have NO CHANCE Of having CF, right? But theyll be...
I got a letter from my doc the other day saying that the FDA has asked all enzyme to re-apply for approval and the deadline is at the end of this month. So far, only two have gotten a re-approval, which doesn't include mine (Pancrecarb), this is the only enzyme that Ive been on that actually...
This is kind of embarrassing, but I had a question about breast development... lately my boobs have been super tender, and my boyfriend and I have noticed that theyve gotten bigger.... The first thing I did was take 3 pregnancy tests, and they all came back negative, so I know Im not pregnant...
Friday I went to the doctor, and he told me I was eliagible for the phase 3 study of ataluren, the drug that fixes the "nonsense" CF mutation. My mutation is R553X/F508del, meaning that the CFTR gene is there, its just cut short, so it doesnt work. Ataluren finishes this protein, basically...
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