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Tom is struggling with his solid foods and has been attending feeding therapy for 4 months now. They have diagnosed him with having food texture issues. So basically he is picky with solids - he still needs all his food to be pureed, although will happily eat crackers, chips, fries, most...
We are very new to all of this, but I am need of advice on clinics. I am becoming more and more unhappy with the care my son is receiving at his current clinic - CHOC. The doctor we see is good, when we get to see her and she has been pro-active in her advice. We usually see the nurses and...
Hi, little Tom had his follow-up clinic visit from his hospital stay of last week and his culture came back positive for nonmucoid pseudo - sigh. It has been a rough week for the little man, but he seems really well, except for his very rattly sounding throat. I am not doing so great, I am in...
Hi, our little one seems to have alot of mucus congestion, and it seems to be getting worse each week. He is now finding it difficult to finish his bottles without me almost force feeding and I am worried he is will start to lose weight. He is doing so well on so many fronts (he is on the...
Our clinic has told us to wait until our next scheduled visit in November for my 4 month old son's first injection. Should he be having this sooner? We live in Orange County in California and are new to the USA so I have no idea of flu seasons here, except of course now that it is fall, so I...
I have just found out that our CF CLinic, which I was of the understanding were accredited by the CFF are not, despite them telling me they were part of the organisation on our first visit. Apparently they lost there status due to adult patients. We are only 3 months into this with our new bub...
Hi, I am new to this forum and new to CF and new to the USA (been here only 5 months)! Our darling little boy was diagnosed 7 weeks ago, he is now 9 weeks and so far so good! We also have an almost three year old who does not have CF - although the doctors think he should be tested, even though...
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