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Anyone here had the opportunity to see what this planet is made of? In 2002 my sister and I were given the greatest Christmas present ever from my Father...he sent us on a backpacking trip to Europe. What was supposed to last for a month or two dragged out to a full 3 months by the time we...

This a pretty damn impressive event happening on Saturday. Many of the world's top surfers will be in attendance to raise money for CF! Now that the correlation has been made between the benefits of surfing and CF we have a whole new group behind us... <a target=_blank...

Anyone have any experience with getting life insurance as a person with cf? Any companies who are willing to cover us? Wondering if it's possible if you exclude cf as condition of coverage. With a family to worry about now I would really like them to be taken care of if I get hit by a bus...

Hi, this is S.'s girlfriend Rene'e. He is in the hospital and the doctor has put him on IV colistin...so far he is hating the way he feels. Have any of you been on this drug before? How was it for you? Thank you so much! Rene'e

Can someone please provide me with the contact info for her(can't remember her name at the moment)? Email addy, snail mail addy, phone, etc. would be great...thanks!

Anna Rose was born on 2/8/06 at 11:07am here in Newport Beach, CA! 7 lbs., 19 inches long! Not bad for being born at 37 weeks. What makes this so special is that she was conceived naturally, something very rare considering 99.5%(if memory serves) of males with CF can't do so. So welcome to...

Dear Friend of the CF Foundation, On Tues., September 27, the CF Foundation will be hosting the live Virtual Patient Education Day Web Cast, â??Total Lung Care: Feel the Difference T.L.C. Makes.â?? Hear--first-hand--how proactive total lung care can make a difference in the life of a person...

my story--my girlfriend and i were supposed to go white water rafting this weekend, but since we recently found out she is expecting, her doctor has put the skids on our plans. i am unable to cancel our reservation since it is so close to the trip, so no refund or credit will be given by the...

It was definitley a successful night! Read about it here--<a target=new class=ftalternatingbarlinklarge href="http://www.dailypilot.com/features/story/17894p-25061c.html">Gala</a>

Does the fact that I have CF automatically make me a carrier of the CF gene? I just found out that my girlfriend and I are going to have a baby and am now in the process of starting to figure out what needs to be known. We are going in for an appointment on Tuesday for the ultrasound and for...

Annonymous posting vs. Logged-In posting Do some of you tend to trust a post by someone who has logged in more than a post done anonymously? I sometimes find myself questioning some topics when they are started by someone promoting the benefits of a product or topics replied to without a name...

Anyone have a couple extra children's sizes they are able to part with? I can paypal the money to you to pay for the bracelets and shipping. Otherwise I may go ahead and purchase 10 from the website and will have extras if anyone else would like one. Let me know! Thanks!

So, I sent in a submission for this series they will be doing on the Today Show in May and what I wanted to do, go to venice with my girlfriend, was picked as one of the top 50. I'm sure a lot of other people submitted the same thing, but who knows, maybe they'll chose me to be the...

The Today show "Live for Today" The Today Show on NBC is doing something cool for the month of May From the website: "What do you want to do before you die? Do you want to climb Mount Everest? Would you like to track down a lost friend or volunteer in a disaster zone? Do you want to learn to...

Hey all, just wanted to say "hi" and introduce myself. My name is Steve and I live in Newport Beach, CA, am 27 years old, and have cf. I have a pretty mild case, which I feel fortunate for because it has allowed me to do quite a bit in my 27 years. I worked in the music biz for 6 years with...