Cystic Fibrosis Forum (EXP)

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  1. T

    Still no answer

    Thanks - It struck a nerve with me too - especially the lady in the lab. I don't know why the immunologist thinks it wouldn't be CF...he has only seen my child twice. They mentioned the mass of paperwork in his file but I wonder if he actually READ any of it. I am just at wit's end. I can't...
  2. T

    Still no answer

    Thanks - It struck a nerve with me too - especially the lady in the lab. I don't know why the immunologist thinks it wouldn't be CF...he has only seen my child twice. They mentioned the mass of paperwork in his file but I wonder if he actually READ any of it. I am just at wit's end. I can't...
  3. T

    Still no answer

    Thanks - It struck a nerve with me too - especially the lady in the lab. I don't know why the immunologist thinks it wouldn't be CF...he has only seen my child twice. They mentioned the mass of paperwork in his file but I wonder if he actually READ any of it. I am just at wit's end. I can't...
  4. T

    Still no answer

    Thanks - It struck a nerve with me too - especially the lady in the lab. I don't know why the immunologist thinks it wouldn't be CF...he has only seen my child twice. They mentioned the mass of paperwork in his file but I wonder if he actually READ any of it. I am just at wit's end. I can't...
  5. T

    Still no answer

    Thanks - It struck a nerve with me too - especially the lady in the lab. I don't know why the immunologist thinks it wouldn't be CF...he has only seen my child twice. They mentioned the mass of paperwork in his file but I wonder if he actually READ any of it. I am just at wit's end. I can't...
  6. T

    Still no answer

    I posted a few months back unsure of what is going on with my son. I really appreciated all the feedback I received and wanted to try again. Wy had sweat tests done early in March, but he didn't produce enough sweat. Lady at lab said, "he doesn't look like a CF kid". Immunologist also...
  7. T

    Still no answer

    I posted a few months back unsure of what is going on with my son. I really appreciated all the feedback I received and wanted to try again. Wy had sweat tests done early in March, but he didn't produce enough sweat. Lady at lab said, "he doesn't look like a CF kid". Immunologist also...
  8. T

    Still no answer

    I posted a few months back unsure of what is going on with my son. I really appreciated all the feedback I received and wanted to try again. Wy had sweat tests done early in March, but he didn't produce enough sweat. Lady at lab said, "he doesn't look like a CF kid". Immunologist also...
  9. T

    Still no answer

    I posted a few months back unsure of what is going on with my son. I really appreciated all the feedback I received and wanted to try again. Wy had sweat tests done early in March, but he didn't produce enough sweat. Lady at lab said, "he doesn't look like a CF kid". Immunologist also...
  10. T

    Still no answer

    I posted a few months back unsure of what is going on with my son. I really appreciated all the feedback I received and wanted to try again. Wy had sweat tests done early in March, but he didn't produce enough sweat. Lady at lab said, "he doesn't look like a CF kid". Immunologist also...
  11. T

    Confused

    Not enough sweat. Tested him twice.
  12. T

    Confused

    Not enough sweat. Tested him twice.
  13. T

    Confused

    Not enough sweat. Tested him twice.
  14. T

    Confused

    Not enough sweat. Tested him twice.
  15. T

    Confused

    Not enough sweat. Tested him twice.
  16. T

    Confused

    Just an update - My doctor did not think I was being unreasonable. She said his weight is good and CF had not been cause for concern. What she doesn't know is that when he wasn't gaining weight, I started giving him Carnation Instant Breakfast. He drinks that (not a whole packet each time)...
  17. T

    Confused

    Just an update - My doctor did not think I was being unreasonable. She said his weight is good and CF had not been cause for concern. What she doesn't know is that when he wasn't gaining weight, I started giving him Carnation Instant Breakfast. He drinks that (not a whole packet each time)...
  18. T

    Confused

    Just an update - My doctor did not think I was being unreasonable. She said his weight is good and CF had not been cause for concern. What she doesn't know is that when he wasn't gaining weight, I started giving him Carnation Instant Breakfast. He drinks that (not a whole packet each time)...
  19. T

    Confused

    Just an update - My doctor did not think I was being unreasonable. She said his weight is good and CF had not been cause for concern. What she doesn't know is that when he wasn't gaining weight, I started giving him Carnation Instant Breakfast. He drinks that (not a whole packet each time)...
  20. T

    Confused

    Just an update - My doctor did not think I was being unreasonable. She said his weight is good and CF had not been cause for concern. What she doesn't know is that when he wasn't gaining weight, I started giving him Carnation Instant Breakfast. He drinks that (not a whole packet each time)...
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