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Hi Guys, please excuse as I may sound a little ignorant (baby is 10mths with CF, so I'm still learning) but aren't you guys worried about the pseudomonas bug? Since this loves water, can you be sure that a steam room is throughly dried out every day. Isn't it quite risky for those with CF? Or...
Hi Guys, please excuse as I may sound a little ignorant (baby is 10mths with CF, so I'm still learning) but aren't you guys worried about the pseudomonas bug? Since this loves water, can you be sure that a steam room is throughly dried out every day. Isn't it quite risky for those with CF? Or...
Hi Grendal,
Can I ask why you stay away from dairy when you can? Reason I ask as I have been trying to research the effects dairy may have (once my baby is old enough for it) regarding it being mucus producing. I am getting very mixed answers & are wondering if this is why you don't have it or...
OK, so now I'm reading this freaking out! We thought & our doctor didn't tell us any differently that moving from Sydney & pollution etc to Noosa no air pollution, 5 mins from beach with very very hot, humid & wet summers (very tropical climate) would be the best thing for our baby. And you guys...
Hi Concerned Grammy, I have been thinking alot about your message maybe because I am having big issues with my mother in law. Unfortunately my relationship with her has been on a steady decline since the birth of our first bub who is 3 1/2 yrs. It is very hard when you become a first time mum...
Hi Greg, I am glad you have asked that question. I was under the impression that hot humid climate was good, however you need to watch she doesn't dehydrate & you need to keep her salt intake up. We have recently moved from Sydney to Noosa - Queensland & they have very hot humid summers...
To Jazzysmom, I thought about the reflux thing as I was told most bubs with CF have reflux problems, however I really don't know. He does a little chucking up after his feeds, but I thought this was normal as my daughter was 100% worse (but I can explain that I wayyyyyyy over fed her! Everytime...
To lovemygirl, I just had to say that the quote on the bottom of your message brought tears to my eyes. It is just beautiful. Thank You <img src="i/expressions/face-icon-small-smile.gif" border="0">
Donna (mum to baby boy 4mths w/cf daughter 31/2yrs wo/cf)
P.S. I would have thought a bit of...
<img src="i/expressions/face-icon-small-mad.gif" border="0"><img src="i/expressions/face-icon-small-confused.gif" border="0"> Just me again looking for answers.....My wee one of 4 months with CF has never really been a happy baby. I was just wondering if other Mums are experiencing the same...
So please explain... For those who have cultured this bug how do they know you have it, I mean what tests are done? It is obviously different in Australia from what I am reading (not the bug! but CF care!!!)
And what happens when you have it, eg lack of energy, a cough, wheezing what? Just...
<img src="i/expressions/heart.gif" border="0"> Hi Julie, Thanks for your lovely words. I did have a big cry when I read it. Yep, I am a big emotional mess every now & then. I know it's early days & I am sure you are right, once I guess I can get a hold of this things will become easier with...
<img src="i/expressions/heart.gif" border="0"> Just me again, I don't think I THANKED you guys enough for all your information. I know it takes time & effort to post messages so the fact that you went to so much detail is so greatly appreciated. I have tried homeopathics in the past for my...
Hey Guys, I really appreciate all the feed back you have given me & others & feel that you would be the best to turn to for info. For some reason I have latched myself onto this pseudomonas bug, and I need many answers to my many many questions about it, yet feel like I'm hitting my head...
For the mummy with the wee 2yr old, I know exactly where you are coming from. I often wonder how I can let my boy (3months wcf) when he's older do all these things. It scares the life out of me particulary this "pseudomonas bug" that everyone talks about. He had his first bath in the "big" bath...
<img src="i/expressions/face-icon-small-smile.gif" border="0"> Hi, I just wanted to say a big THANKS to all that has replied, this is exactly what I was after. Will keep you informed if we find something additional that works well.
Yours in health
Donna (mum of baby Saxon 3mths w/cf, Georgia...
<img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks for this I appreciate it.
I am still interested to hear if anyone is using therapies such as Bowen, Acupuncture, Naturopathic or Homeopathic remedies etc that are working for them as a preventative measure &/or when...
Hi, I am new to this website as our wee baby boy was just diagnosed with CF a week ago. Since we have gotten over our grieving & shock, we have been madly trying to educate ourselves on this disease. One thing I was hoping if someone could share, is if they have had any sucess with alternative...
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