Cystic Fibrosis Forum (EXP)

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  1. G

    Make a Wish foundation

    It came up in a conversation while we were in the doctors and she said the make a wish foundation was looking at how healthy the kids were when applied. Based on that I never looked further into it.
  2. G

    Make a Wish foundation

    When we talked to our social worker, she told us that my children were too healthy and they would be denied a wish. I dropped it after that.
  3. G

    To the "chubby" CFers

    To the My DD is overweight. Since being diagnosed November 2010, she has gained 50 lbs. She was 9 at the time. Before being diagnosed she was sick alot and coughing all the time, so I think that has something to do with it. She is PS. The doctors have not said anything about her weight but her...
  4. G

    To the "chubby" CFers

    To the My DD is overweight. Since being diagnosed November 2010, she has gained 50 lbs. She was 9 at the time. Before being diagnosed she was sick alot and coughing all the time, so I think that has something to do with it. She is PS. The doctors have not said anything about her weight but her...
  5. G

    Good CF doc in Ohio?

    We also go to the CF Clinic at Toledo Children's Hospital. We have only been going there for about 9 months but so far we love the doctor's there. I have not met the new doctor yet but I am sure she will be just as great.
  6. G

    Good CF doc in Ohio?

    We also go to the CF Clinic at Toledo Children's Hospital. We have only been going there for about 9 months but so far we love the doctor's there. I have not met the new doctor yet but I am sure she will be just as great.
  7. G

    Good CF doc in Ohio?

    We also go to the CF Clinic at Toledo Children's Hospital. We have only been going there for about 9 months but so far we love the doctor's there. I have not met the new doctor yet but I am sure she will be just as great.
  8. G

    7 year old waking up with tummy aches

    My son was having stomach pains and having regular bowel movements but still ended up in the hospital with bowel obstruction. He stayed overnight so they could put in golytely in through a ng tube because he wouldn't drink it at home. He now takes miralax daily so it don't happen again.
  9. G

    7 year old waking up with tummy aches

    My son was having stomach pains and having regular bowel movements but still ended up in the hospital with bowel obstruction. He stayed overnight so they could put in golytely in through a ng tube because he wouldn't drink it at home. He now takes miralax daily so it don't happen again.
  10. G

    7 year old waking up with tummy aches

    My son was having stomach pains and having regular bowel movements but still ended up in the hospital with bowel obstruction. He stayed overnight so they could put in golytely in through a ng tube because he wouldn't drink it at home. He now takes miralax daily so it don't happen again.
  11. G

    increasing stomach pains and accidents

    My DD(10) is pancreatic sufficient but her doctors have told me that it could change at anytime.
  12. G

    increasing stomach pains and accidents

    My DD(10) is pancreatic sufficient but her doctors have told me that it could change at anytime.
  13. G

    increasing stomach pains and accidents

    My DD(10) is pancreatic sufficient but her doctors have told me that it could change at anytime.
  14. G

    What should I do?

    They wanted to make sure she didn't have a reaction to it. I finally talked to a doctor and he said go ahead start it but to call them if she had any problems. I really didn't want to wait another week. Thanks for your advice.
  15. G

    What should I do?

    They wanted to make sure she didn't have a reaction to it. I finally talked to a doctor and he said go ahead start it but to call them if she had any problems. I really didn't want to wait another week. Thanks for your advice.
  16. G

    What should I do?

    They wanted to make sure she didn't have a reaction to it. I finally talked to a doctor and he said go ahead start it but to call them if she had any problems. I really didn't want to wait another week. Thanks for your advice. <br />
  17. G

    What should I do?

    My DD has cultured pseudomonas and the doctor had called in Tobi to the pharmacy.  Since this her first time doing it they want to have her do her first treatment in their office.  The RT said she would have to call me back and let me know when she could get us in.  She said they are really busy...
  18. G

    What should I do?

    My DD has cultured pseudomonas and the doctor had called in Tobi to the pharmacy. Since this her first time doing it they want to have her do her first treatment in their office. The RT said she would have to call me back and let me know when she could get us in. She said they are really busy on...
  19. G

    What should I do?

    <p>My DD has cultured pseudomonas and the doctor had called in Tobi to the pharmacy. Since this her first time doing it they want to have her do her first treatment in their office. The RT said she would have to call me back and let me know when she could get us in. She said they are really busy...
  20. G

    Received the new shipment of CF awareness bracelets!!!

    I am interested in some bracelets. Are they still avaiable?
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