Search results

I left my old CF Clinic a while back because the great doctor who led the team, and whom I'd known my entire life, left the area. Subsequently, the adult program really left something to be desired there, and the situation became so bad that after months of phone calls and messages they've still...

It's been a while, but the main reason I was prescribed it at the time was due to a minor level of infection regarding pseudo. Since then it's also saved me twice from pneumonia infections (Completely cleared it up both times). I will definitely check with the CF Pharmacy. Sometimes I...

The funny thing is that my last two prescription refills were signed by my pediatrician of all people (Their entire practice became so close to me, that they acted as my GP until they retired). The one thing that's changed within the past year is my pharmacy, though, and it's been quite...

For the longest time I had a Tobi nebulizer prescription with the understanding that I'd take a month long dose, followed by a month off, and go on it for a month again, etc. The pause times for treatment procedures was to not over tax my kidneys and so forth. However, the great doctor I once...

Any garbage you're introducing into your airways is bad, period. It's bad for a healthy person, and can be a death sentence for somebody with CF. If you must utilize any form of THC/CBD/etc., then at least do yourself a favor and never smoke it. Smoke = bad news for the airways of most living...

Which disability declaration in particular are you most focused upon? In school, both public and college, I was covered under Federal Law (504). In the workplace we are backed by the EEOC, and the ADA covers us there and elsewhere. I'm simply trying to clarify the focus so I can understand it...

Serious question here: What sort of feasibility is there in her parents/family members/strangers donating lobes of their own lungs towards her? I know that it has in fact been successfully accomplished before, and I'm genuinely curious about that being used as a last-ditch effort in this case.

One of the things that caused me to sweat excessively in that area was having taken too many decongestants (Including a once daily Allegra-D, and other over the counter meds). I have been a regular user of Allegra (Non-decongestant) for the past couple of years, and I really don't have the...

I am not from Pakistan, but the majority of my friends are. What part of the country do you hail from?

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hannahfstaloch</b></i> I'd love to see this documentary- I'm currently studying in Argentina, though, with no access to the Oprah Winfrey Network. Does any one know if there is a way I can watch it while I'm here? Thanks so much!</end...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hannahfstaloch</b></i> I'd love to see this documentary- I'm currently studying in Argentina, though, with no access to the Oprah Winfrey Network. Does any one know if there is a way I can watch it while I'm here? Thanks so much!</end...

If given the opportunity to do so,I could sleep forever, and so you can basically call me Rip Van Winkle, lol. In high school I hated having to get up every single day at no later than 5 AM, and I usually went through the day with five hours of sleep max, so I would always take a nap when I got...

If given the opportunity to do so,I could sleep forever, and so you can basically call me Rip Van Winkle, lol. In high school I hated having to get up every single day at no later than 5 AM, and I usually went through the day with five hours of sleep max, so I would always take a nap when I got...

Awesome jessykt, please keep us informed upon your progress!

Awesome jessykt, please keep us informed upon your progress!

I'm not certain how bad your infection is, and I don't want to tell you to use O2 or not, but whatever you do start out SLOWLY. I had pneumonia two years ago, and I self-diagnosed as well as administered medication for it (TOBI), which fortunately solved the issue, but I was completely knocked...

I'm not certain how bad your infection is, and I don't want to tell you to use O2 or not, but whatever you do start out SLOWLY. I had pneumonia two years ago, and I self-diagnosed as well as administered medication for it (TOBI), which fortunately solved the issue, but I was completely knocked...

I don't even know exactly what mutation I have, but I do know that it's closer to the surface of the gene since I'm very lucky in not being as sick as most (I think my lucky GA up above, and God, each and every day). Is a defect closer to the surface considered a "Gating" mutation? Regardless...

I don't even know exactly what mutation I have, but I do know that it's closer to the surface of the gene since I'm very lucky in not being as sick as most (I think my lucky GA up above, and God, each and every day). Is a defect closer to the surface considered a "Gating" mutation? Regardless...

Sometimes when I went in for a check-up the doctor would note that I had lost weight, but of course it was always intentional. Sometimes people find it hard to believe that as a CF patient, I'm actually trying to lose weight. Hey, though, one of the perks is that I can eat tremendous amounts of...