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Has anyone heard of Alcaligenes? I just got a sputum culture back and it says I grew this along with my usual staph infection. It says it's rare and my primary care doc says he's never seen it before. cfNana

I kind of doubt the hospital would mail out x-rays, maybe they would mail out the results of what they found but looking at an x-ray isn't going to tell you if you have CF. They would show scarring and possibly signs of bronchiectesis etc. but you need to have sweat tests or gene testing to...

Do you have 2 sick kids with CF? I wouldn't trust a sweat test anywhere than from an reputable CF center I had one done at our local Hosp. , the nurse actually scraped the sweat from my skin, it came back difinately positive the numbers were as high as they could be. At a good CF center they...

Just curious anonymous, what were your numbers when you had your sweat chloride tests done? 60 and above are considered positive. I guess adults are a little higher than normal but according to the CF guidelines 60 still means positive. The first childrens hospital I was tested at didn't think...

You deffinately need to go to a CF center but don't depend on genetic testing alone. I haven't had genetic testing for many years but at the time they had not discovered my mutation. I was diagnosed by the sweat chloride test alone. It's still the best diagnostic tool available according to the...

I agree with ClashPunk82, I've had 2 kids I don't know what my PFT's were because I wasn't diagnosed until after they were born. I did start getting frequent pneumonia shortly after my first one was born and no one could figure out why, but as far as PFT's I know they were lower several...

Covaderm is a soft material like bandage, it allows the skin to breathe. I became so allergic to the tegaderm they used around my PICC that I ended up getting cellulitis, now everytime they put certain adhesives on my skin ( it doesn't have to be where the PICC was ) I break out at the PICC...

I get one every time I get one. I also got one from my port and even when they put a PEG tube in. They say they aren't going to put any more PICC's or Ports in but I think they are going to have to re-think that because my veins are pretty much gone and when I'm on IV's I have to have them...

I keep trying to talk my Dr. into letting me have prednisone. How tall are you? I'm 5'6" and am currently at 105, thats only because I have recently had a PEG put in, I do understamd how you feel though. I've always weighed around 92 to 98 during my good times, but a year and a half ago they...

I use Ciprofloxacin (cipro), Biaxin, Augmentin, Bactrim, Levaquin, and Dicloxacillin when I need orals. Most of the time It's Cipro, levaquin, and Bactrim. The rest of the time I'm on Iv's. If the ones you are on work thats great. If not you have a lot of choices. --I'm 46 with CF, it's good...