Cystic Fibrosis Forum (EXP)

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  1. T

    Anyone with DeltF508 and (TG) 12-5T?

    No Kindergarten? Huh? Anyway, she got over RSV fast, just like the rest of us that were sick. She gets albuterol when needed. Other than that, she treated like a normal baby. She got sick because it was going around day care. She's 4 mo old this week and has doubled in size. No coughing...
  2. T

    Anyone with DeltF508 and (TG) 12-5T?

    No Kindergarten? Huh? Anyway, she got over RSV fast, just like the rest of us that were sick. She gets albuterol when needed. Other than that, she treated like a normal baby. She got sick because it was going around day care. She's 4 mo old this week and has doubled in size. No coughing...
  3. T

    Anyone with DeltF508 and (TG) 12-5T?

    No Kindergarten? Huh? <br /> <br />Anyway, she got over RSV fast, just like the rest of us that were sick. <br /> <br />She gets albuterol when needed. Other than that, she treated like a normal baby. She got sick because it was going around day care. <br />She's 4 mo old this week and has...
  4. T

    A mother knows best

    Wow, Just read your post. My daughter was DX through NBS. I'm glad I am not the only one who questions doctors. I was told "Her mutation may never even bother her, however, I have had some patients with this mutation that have mild symptoms." Then the CF doc wanted me to give her...
  5. T

    A mother knows best

    Wow, Just read your post. My daughter was DX through NBS. I'm glad I am not the only one who questions doctors. I was told "Her mutation may never even bother her, however, I have had some patients with this mutation that have mild symptoms." Then the CF doc wanted me to give her...
  6. T

    A mother knows best

    Wow, Just read your post. My daughter was DX through NBS. I'm glad I am not the only one who questions doctors. <br /> <br />I was told "Her mutation may never even bother her, however, I have had some patients with this mutation that have mild symptoms." Then the CF doc wanted me to give...
  7. T

    Anyone with DeltF508 and (TG) 12-5T?

    I am going to a clinic. She is asymptomatic for the time being. I have been trying albuterol as a preventative, but it makes her hyper. If she could walk yet, she'd probably running circles around the house for hours! I have been told at the clinic that they only want to see her every...
  8. T

    Anyone with DeltF508 and (TG) 12-5T?

    I am going to a clinic. She is asymptomatic for the time being. I have been trying albuterol as a preventative, but it makes her hyper. If she could walk yet, she'd probably running circles around the house for hours! I have been told at the clinic that they only want to see her every...
  9. T

    Anyone with DeltF508 and (TG) 12-5T?

    I am going to a clinic. <br /> <br />She is asymptomatic for the time being. I have been trying albuterol as a preventative, but it makes her hyper. If she could walk yet, she'd probably running circles around the house for hours! <br /> <br />I have been told at the clinic that they only...
  10. T

    Anyone with DeltF508 and (TG) 12-5T?

    My daughter was diagnosed with CF just a few weeks ago. I am trying to find as much information about her form of CF. Any information would be welcome. I am told that this is "mild" but varies. I guess I would like to know what she may be info, even thohg I know it's different for everyone...
  11. T

    Anyone with DeltF508 and (TG) 12-5T?

    My daughter was diagnosed with CF just a few weeks ago. I am trying to find as much information about her form of CF. Any information would be welcome. I am told that this is "mild" but varies. I guess I would like to know what she may be info, even thohg I know it's different for everyone...
  12. T

    Anyone with DeltF508 and (TG) 12-5T?

    My daughter was diagnosed with CF just a few weeks ago. I am trying to find as much information about her form of CF. Any information would be welcome. I am told that this is "mild" but varies. I guess I would like to know what she may be info, even thohg I know it's different for everyone...
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