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Thank you guys so much for your responses! It really helped me a lot. All of my CF friends have passed, and so I don't have anyone in my life to bounce these kinds of questions off of, so I really appreciate it. My husband is in the medical field and will be graduating school in May, so we...

Hi all, I am sure there has been a topic on this in the past, so I apologize if I am repeating anything. I tried to search for it but didn't see anything. I am just wondering at what point people here had to stop working full-time, and how you came to that conclusion? I am still fairly active...

I am loving this thread! Amazing how ignorant people really are. My best story is from a few months ago, when I was at the ENT to discuss getting sinus surgery (which I just got). The lady at the front desk said, "I see you've had cystic fibrosis in the past. Do you currently have it?" Later...

I am loving this thread! Amazing how ignorant people really are. My best story is from a few months ago, when I was at the ENT to discuss getting sinus surgery (which I just got). The lady at the front desk said, "I see you've had cystic fibrosis in the past. Do you currently have it?" Later...

I used to go to work (and I went to school when I was a teen) but I can't anymore. I get so sick off the meds they use that I would be completely useless at work.

I used to go to work (and I went to school when I was a teen) but I can't anymore. I get so sick off the meds they use that I would be completely useless at work.

I used to go to work (and I went to school when I was a teen) but I can't anymore. I get so sick off the meds they use that I would be completely useless at work.

When I was in the hospital in March, they refused to use heparin. I was told over and over again that the "new" PICCs don't need it. It made me so uncomfortable!

When I was in the hospital in March, they refused to use heparin. I was told over and over again that the "new" PICCs don't need it. It made me so uncomfortable!

When I was in the hospital in March, they refused to use heparin. I was told over and over again that the "new" PICCs don't need it. It made me so uncomfortable!

I was 16.

I was 16.

I was 16.

I was 16 when I was first admitted - amazed I made it that long! Since then though, yearly visits are the norm...

I was 16 when I was first admitted - amazed I made it that long! Since then though, yearly visits are the norm...

I was 16 when I was first admitted - amazed I made it that long! Since then though, yearly visits are the norm...

I agree with all of you that think the CFF website is way too cheerful. I've always found that was the first place people went to when they found out I had CF, and then they thought I was just fine. Either that, or they would google some dire article and call me crying about how I was about to...

I agree with all of you that think the CFF website is way too cheerful. I've always found that was the first place people went to when they found out I had CF, and then they thought I was just fine. Either that, or they would google some dire article and call me crying about how I was about to...

I agree with all of you that think the CFF website is way too cheerful. I've always found that was the first place people went to when they found out I had CF, and then they thought I was just fine. Either that, or they would google some dire article and call me crying about how I was about to...

I have the same horrible reactions to Bactrim. I just finished a 2-week oral antibiotic course and the only thing that kept me going through it this time was the Zofran that dissolves in your mouth. Phenagren used to work, but I would throw it up as soon as I took it. This new Zofran worked...