Cystic Fibrosis Forum (EXP)

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  1. L

    What to do between rounds of tobi?

    When im on my off my month of tobi my doctor wants me to use cayston.
  2. L

    What to do between rounds of tobi?

    When im on my off my month of tobi my doctor wants me to use cayston.
  3. L

    how many times do you take pulmozyme

    My doctors here in Michigan at the U of M Ann Arbor state you should do albuterol, hypertonic saline, pulmozyne and then an inhaled antibiotic. But the Pulmozyne i only due once a day. The rest are twice a day
  4. L

    how many times do you take pulmozyme

    My doctors here in Michigan at the U of M Ann Arbor state you should do albuterol, hypertonic saline, pulmozyne and then an inhaled antibiotic. But the Pulmozyne i only due once a day. The rest are twice a day
  5. L

    Adults please

    Thanks again so much everyone. I made an appointment to see my doctor today to get some medication to help with this depression even though I hate taking these type of meds. I truly appreciate the fed back. Just getting to talk with people who are dealing with this disease help so much...
  6. L

    Adults please

    Thanks again so much everyone. I made an appointment to see my doctor today to get some medication to help with this depression even though I hate taking these type of meds. I truly appreciate the fed back. Just getting to talk with people who are dealing with this disease help so much...
  7. L

    Adults please

    Thanks so much Caroline you are so right I know I can't depend only on the test my luck would be for it to come back and say thats not the answer and start back at square one. Lately have been trying to eat gluten free as much as I can , Im not much of a grains eater. I have been dealing with...
  8. L

    Adults please

    Thanks so much Caroline you are so right I know I can't depend only on the test my luck would be for it to come back and say thats not the answer and start back at square one. Lately have been trying to eat gluten free as much as I can , Im not much of a grains eater. I have been dealing with...
  9. L

    Adults please

    Thank you so much everyone I really appreciate it to the fullest. And believe me today is a new day i will take it one step at a time. And thank you Rmotion I have recently been dealing with tons of stomach problems and have looked up celiacs a friend of mine just got diagnosed with the disease...
  10. L

    Adults please

    Thank you so much everyone I really appreciate it to the fullest. And believe me today is a new day i will take it one step at a time. And thank you Rmotion I have recently been dealing with tons of stomach problems and have looked up celiacs a friend of mine just got diagnosed with the disease...
  11. L

    Adults please

    Thanks so much everyone for the encouragement and motivation. I know whats required of me to do well believe that! I guess my whole probably is I have dealt with so much in just my 25 years that even though I have a son I feel like my body and mind has taken all it can take. Just for a lil cap i...
  12. L

    Adults please

    Thanks so much everyone for the encouragement and motivation. I know whats required of me to do well believe that! I guess my whole probably is I have dealt with so much in just my 25 years that even though I have a son I feel like my body and mind has taken all it can take. Just for a lil cap i...
  13. L

    Adults please

    Hi, I need some help. Im 25 married with CF with a 4 y/o son. I also along with CF have Anemia, fibromyalgia, osteopenia, depression, anxiety, MRSA on and off and currently being treated for MAC. I have been a slacker for this year dealing with depression and haven't been doing my breathing...
  14. L

    Adults please

    Hi, I need some help. Im 25 married with CF with a 4 y/o son. I also along with CF have Anemia, fibromyalgia, osteopenia, depression, anxiety, MRSA on and off and currently being treated for MAC. I have been a slacker for this year dealing with depression and haven't been doing my breathing...
  15. L

    getting irritated by people who say this to me

    I get this alot too!!! I sometimes just let these people talk, you are the only person who knows what your mind and body allow you to do. Live your life to the fullest is what I believe and always try something once.
  16. L

    getting irritated by people who say this to me

    I get this alot too!!! I sometimes just let these people talk, you are the only person who knows what your mind and body allow you to do. Live your life to the fullest is what I believe and always try something once.
  17. L

    Pain Question

    <P>Hi Maggie,</P> <P>I have the same problems I have had pain problems now for about 4 years, constant pain  almost every day something is bothering me legs, arms, back, torso, also with the numbness in my arms , I recently had my chest port ct'd with dye to make sure the numbness wasnt from it...
  18. L

    Pain Question

    <P>Hi Maggie,</P> <P>I have the same problems I have had pain problems now for about 4 years, constant pain almost every day something is bothering me legs, arms, back, torso, also with the numbness in my arms , I recently had my chest port ct'd with dye to make sure the numbness wasnt from it...
  19. L

    Pain Question

    <P>Hi Maggie,</P> <P>I have the same problems I have had pain problems now for about 4 years, constant pain almost every day something is bothering me legs, arms, back, torso, also with the numbness in my arms , I recently had my chest port ct'd with dye to make sure the numbness wasnt from it...
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