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You asked if you can increase lung function during pregnancy, particularly during early pregnancy. I say, "Yes!" My baby is 22 years old. When I was pregnant, I walked 40 minutes every week day and was dedicated to my treatments. My best lung function EVER was 2 weeks before Erica was born...
I have a sinus nebulizer. It was ordered by Dr. Holly Boyer at the University of Minnesota. She's something of a CF sinus specialist. I got the machine, neb and drugs from ASL Pharmacy. Their contact info is 866.552.7579.
I honestly don't know why I needed a new nebulizer machine. I just...
Some people will never get it. My mother will tell people I'm dying and then minutes later be mad because I don't want to do construction work after working an 8 hour shift on my feet. Those people are all about themselves. And if they are giving you anything, they feel they have control of you.
Some people will never get it. My mother will tell people I'm dying and then minutes later be mad because I don't want to do construction work after working an 8 hour shift on my feet. Those people are all about themselves. And if they are giving you anything, they feel they have control of you.
I am 40, diagnosed at 5, just popped back into the 90s after being in the 70s and 80s for three years. I was terminated from a 15 year job 5 years @ 1 dept and 10 years in another dept for being inconsistent. I suppose that was due to me declining health and three deaths in our family in three...
I am 40, diagnosed at 5, just popped back into the 90s after being in the 70s and 80s for three years. I was terminated from a 15 year job 5 years @ 1 dept and 10 years in another dept for being inconsistent. I suppose that was due to me declining health and three deaths in our family in three...
Does anyone besides me have a terrible time getting "narcotics" to treat the pain. I've been on and off loracet numerous times over the past 20 years for sinus surgeries and kidney stones. Yet every time I tell them that what I have (ibuprofen or aleve) is not working, the cf doc; the ent, and...
Does anyone besides me have a terrible time getting "narcotics" to treat the pain. I've been on and off loracet numerous times over the past 20 years for sinus surgeries and kidney stones. Yet every time I tell them that what I have (ibuprofen or aleve) is not working, the cf doc; the ent, and...
From experience, do NOT use the eflow/trio for abuterol. You will feel like you are having a seizure from the shakes you will get. the eflow super concentrates the meds. That's why you use regular tobramyicin instead of Tobi in it. I've used it for both Tobra and Coly. I haven't asked about...
From experience, do NOT use the eflow/trio for abuterol. You will feel like you are having a seizure from the shakes you will get. the eflow super concentrates the meds. That's why you use regular tobramyicin instead of Tobi in it. I've used it for both Tobra and Coly. I haven't asked about...
Nobody can tell you if you can or can't.
There are several things to consider. I know when you are young and you meet someone else that knows what you go thru you feel a connection. Or even when you are older. However, when you are young, those dang hormones make you make decisions that you...
Nobody can tell you if you can or can't.
There are several things to consider. I know when you are young and you meet someone else that knows what you go thru you feel a connection. Or even when you are older. However, when you are young, those dang hormones make you make decisions that you...
I've had joint and muscle pain for several years.
The cf doc blamed it on low vitamin D and an inflammatory response to the infection in my lungs. Once I started Replesta, the vitamin D levels returned to normal. The pain did not go away. Now the doc claims it is cf related arthritis...
I've had joint and muscle pain for several years.
The cf doc blamed it on low vitamin D and an inflammatory response to the infection in my lungs. Once I started Replesta, the vitamin D levels returned to normal. The pain did not go away. Now the doc claims it is cf related arthritis...
I find the hyper and Tobramyicin take the longest. Are you taking Tobi or Tobramyicin? That can make a difference. Also, the cleanliness of your nebs makes a difference, especially with muco and antibiotics. They are sticky and the build up slows the neb. Make sure their bath includes...
I find the hyper and Tobramyicin take the longest. Are you taking Tobi or Tobramyicin? That can make a difference. Also, the cleanliness of your nebs makes a difference, especially with muco and antibiotics. They are sticky and the build up slows the neb. Make sure their bath includes...
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