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Its good your doing research...I didnt when my daughter got hers...When she came out of surgery it was about at her ribcage...and the major problem was how do we do the vest whan your accessed?..She flat refused...said it hurt and was uncomfortable...So maybe consider that...pressure and shaking...

Its good your doing research...I didnt when my daughter got hers...When she came out of surgery it was about at her ribcage...and the major problem was how do we do the vest whan your accessed?..She flat refused...said it hurt and was uncomfortable...So maybe consider that...pressure and shaking...

We would hang everything...every card, every note...every drawing...all of it...Also as a working mom of a child who is 10 with CF...you can view who came in the room by hangin a sheet of paper or poster size board...called "Wall of Love" or wall of Encouragment...and anybody who came in would...

We would hang everything...every card, every note...every drawing...all of it...Also as a working mom of a child who is 10 with CF...you can view who came in the room by hangin a sheet of paper or poster size board...called "Wall of Love" or wall of Encouragment...and anybody who came in would...

I posted waht is down below under transplant I think, can you tell I am new at this,... but Joanne recommended to post under adults so I am doing that and want to add she does have medicaid, but I mean home and what about the actual transplant, I am thinking as least 6 weeks off from work...

Thanks for the input I shall keep them all in mind... I am thankful that this website is available because I have found the stories of those with CF to be very informative. I just need to know I am not alone in this ,you know?...

I need advice. My daughter Linda has CF and has been in the hospital 5 times this year, once for surgery(small bowel obstruction) the rest tune ups. I havent been on the forums lately becuase of all that is going on, and I just joined this forum this year. This has been the roughest year so far...

What the docs and nurses told me they did not want to give vest to children less then three because of babyshaking syndrome... My daughter turned 4 in June and she does ok, she complains her stomach hurts, I check the pressure, thats how much it squeezes and adjust the speed. Mine is from...

I had a question? Is there rules as to what you shouldnt say on these forums, because I am new at this site and new at forums, the first time I chatted online was on this Cf website. But I offered advice about death and shared my faith and they remved my opinion from the forum. So is there...

Hi Morgan! I am a mom of a 4yr old girl with CF. I would just like to share alittle of my faith and what I have shared to my girls, (a 7, 6, 4 all girls) My 7 yr old came home and she said someone told her that the CF Linda has can cause death, why they would say this to a 7 yr old, i dont...

I am a mom of a 4yr old CFer. All families expecting are always asked, "What do you want to have? "My reply was as probably most, as long as its healthy"... How naieveof me looking back, because my Linda is the best thing that could have ever happened to me. In John chapter 9 there is a man...

Hi this is the 4yr old's mom, stubborn to do the vest. Thanks your input has been a wealth of information! I definately feel... not alone.

Hi I am a mom of a 4yr old girl who has been diagnosed with CF since a month after birth. She has been in the hospital four time in the last year and has recently begun doing the vest....She complains of stomach pain and not all the time but yells and screams kicks, basically throwing a tantrum...